The eve of Christmas, mass and dinner with my mom’s side of the family. And on Christmas itself, home recovering from the holiday stress. And then back to work for the few days before the turn of the year. That’s how it’s been in previous years. But this year was quite different. Good or bad? Let’s see.
The eve of Christmas was still marked off for the family. But more than my being stranded between the generations, this year I’d be the star. Oh wait, more like I’d have the star. The Li’l Bastard was to make his first appearance as the family’s new bunso at his first Christmas. He was dressed in a little grey shirt with blue piping that matched my own outfit. New places and new faces, kept him quite overwhelmed.
I successfully weaseled out of mass since pets aren’t allowed in the chapel. So we walked around the village to while away the time. Then it was time for a change of costume, as Santa Paws of course! Yes, the Li’l Bastard loves to dress up. And naturally, he became center of attention, the fashionable little whiny pup that always had his left paw up like a limp-wristed twink. Hahaha. Oh well. Mana mana.
By the end of the evening, I was just glad Christmas only happens once a year. Oi, pardon me for thinking that way as early as Christmas Eve.
Christmas Day, I had planned to stay home. But no. I had find internet access because I had work to do. Work?! I knowwwww! Work! So I spent the morning in a coffee shop at the mall, stalling enough through my iced mocha to get everything done. And then I headed back in time for lunch and to spend some home time.
The 26th and 27th continued in the same fashion. No plans, just rest. I did go out for a while to bump into a former college professor of mine to catch up on stuff over a couple of beers, but that was it. Recharge. Recharge.
I had the 28th planned out. I badly needed to go to RITM for med refill… as in two weeks ago. I had already borrowed a month’s supply of ARVs from W, with whom I share the same combination. So like a workday, I left the house at 7:00 am, but this time braved the MRT. Thankfully, it wasn’t as jam-packed as the usual workday rush hour. I actually got to RITM in under an hour, which I found amazing.
There, I texted an online friend. We were eyeballing. Meeting was easy since there were just two of us there at the clinic that early. We talked a bit. He told me about deciding to get tested after noticing he was getting sick a lot, and because he had come from a relationship with a particularly promiscuous guy. I found that amazing that he instantly thought HIV may be the culprit, not your normal reaction. He was barely a month on ARVs, and was there to complete some other baseline tests.
Ate came in and arranged for my refill. Leafing through my records, she pointed out some results. My viral load. The viral load is a quantitative measure of the HIV virus in the blood. The lower that is, the better. I’d never seen my results before. Apparently, my viral load, which is measured annually, has been UNDETECTABLE both in 2009 and 2010. I know I should’ve been jumping for joy, but I was probably in disbelief. Really?! Then my lifestyle, the medicines, and the yoga are working that well. Wow, well I’ll take that.
I left my new friend at the clinic while I went to the pharmacy. Mission accomplished. Ate also sent me to the back office, to submit some stuff for Philhealth. Oi, Philhealth is a long story...
So anyway, that done, I tagged along with my new friend for his errands. Back at the clinic, we caught the other nurse, Ate S. While figuring out my friend’s ARVs, she mentioned they’d started ARVs at the same time. Say what?! Sa kanya ako nahawa eh! I was aghast. Did they have unprotected sex? Did we have a pusit nurse all along?
Well, not quite. Apparently, Ate S suffered from an accidental needle prick injury while administering a PPD test to my friend on a previous visit. So however small the risk, she needed to have a prophylaxis, which meant a month of the very ARVs we‘re taking, just as a precaution. Talk about immersing yourself in the patient’s world, huh? A firsthand experience of ARVs. Not everyone can claim that. But she was in good spirits and was already joking about it.
Oh, and Ate S’ short stint with the RITM is about to end. She said she’d no longer be with us in 2011. Nope, nothing to do with the accident. She’s going to go to med school. I was saddened by the news a bit, she grew into such a competent nurse for us, but I know it’s for the best. You’ll never know, she might come back as our Doc S someday. Hmmm.
From there, we headed off and had lunch at the mall. An early lunch, he was, after all, coming from fasting for all his blood tests. From there, I headed back home to prepare to spend the afternoon with the hubby. Mmm.
Wednesday, the 29th, was Yoga for Life day as usual. But just after lunch, I was off on a mission in Manila. BFF and I met up and took the LRT to Tayuman. We walked a couple of blocks, and finally found our destination. YAFA. Youth AIDS Filipinas Alliance, an HIV advocacy group.
We found the address, but weren’t sure, since it didn’t look right. We knocked. The door was unlocked and opened up to a stairway. We walked up. Tao po? Someone walked out in just his underwear. Oh, welcoming committee? Hehe. Well, we seemed to catch them at the least perfect time. Let’s put things in context, they had scheduled a general cleaning that day, and there was a power interruption, thus, the outfit, or lack thereof.
As soon as they gathered their composure, we got the honor of sitting down with the famous DyingYoung. He told us all about YAFA, and BFF was able to ask his questions about one of their projects. It was actually very interesting, and reinforced the respect I have for YAFA. For such a young group, they’ve really been making waves.
From there, I got BFF to accompany me to the Manila Social Hygiene Clinic. It’s maybe been more than a year since I was last there. Nurse Malou Tan is no longer connected to the SHC. But I got to see Dra. Diana Mendoza, rebond and all. I don’t even think she remembered my name. I left some Positivism brochures with her and asked how the SHC was doing.
They still have free HIV rapid testing there at the Manila SHC, so she asked that we refer people to them for screening. They’re open Mondays to Thursdays, 8:00 am to 3:00 pm, and Friday mornings till noon.
And from there, we took the LRT-MRT route to Ortigas. After a quick snack in Shangrila, we headed to yoga early. Yoga was special today. A hundred and eight sun salutations. Yes, 108 forward bends, halfway lifts, pushups down, and upward- & downward-facing dogs. Was I confident I could do it? Not particularly. But I was going to try. And try I did.
After it all, up to today, two days after, biceps and triceps, quads and calves, back and chest, basically from the top of my neck to the soles of my feet, I’m sore. Sore in a good way. And the fulfillment of getting through the 108 sun salutations is phenomenal. Roarrrrr!
So that was my itinerary for the week leading up to the turn of the year. Sounds like a lot for just a week, especially for me. If that’s going to set the stage for 2011, then it’s going to be a busy one. Bring it on. Bring it on. With that, I hope everyone has all their fingers intact, and had a very Happy New Year. It's 1-1-11. Nagpaputok ka ba?
Saturday, January 01, 2011
Holiday Count Down
Wednesday, March 31, 2010
The Test: Taking Two
March 31, 2010. The last day of March. The end of the first quarter of the year. The 90th day of the year, 91st for leap years. The birthday of such famed personalities as father of modern philosophy Rene Descartes, civil rights activist Cesar Chavez, former United States vice-president Al Gore, and Star Wars’ Obi-Wan Kenobi actor, Ewan McGregor.
But for me, March 31st has, in recent years, taken on a new meaning.
Flashback to two years ago. I remember it was a Monday. A regular working day supposedly. But waking up early, I was not going my usual route to Ortigas for work. I took a ride to the Manila area. It’s not easy to believe that it’s already been two years. It was exactly two years ago, on the fateful day of March 31, 2008, that I had finally gone to get tested for HIV. It was to be my first... and my last.
I remember how much of a fool I made of myself just getting tested. I mean, I had been wanting to get tested for a while already. Take note, I wanted to get tested. It never occurred to me that I needed to get tested. I had finally decided to get tested maybe a couple of weeks before. I was actually outside the gate of the Social Hygiene Clinic already the week before.
Yep, you read it right. I was just outside the gate. I never made it inside the week before. My paranoia got to me. I mean I got my feet to take me to Manila, but couldn’t get past all my fears enough to take myself up those final few steps to the second floor to actually get tested. So I chickened out and just headed off instead. Hehehe.
I’m not ashamed to admit that I chickened out. It was all about my being scared.
I don’t really think I was thinking along the lines of “What if I test positive for HIV?” I think I knew already that I wasn’t exactly going to get the results right away. And I definitely wasn’t thinking that far ahead.
It was more about my reputation. I mean, yeah, I knew within myself that my rePUTAtion wasn’t going to be damaged that much. But I know my worries included “What are they going to think of me?”, “What if they judge me?”, and “Will getting tested make me less of a person in the eyes of others?”
Based on other people’s reactions to getting tested, I think I’m pretty normal to have thought that way. Even now that I know a lot about HIV, I know it’s still the normal way for Filipinos to react. But I also know that it’s sad.
It’s sad that one has to feel that tortured just getting tested for HIV. It’s sad that we live in a culture that fosters that kind of judgment against people who are just concerned for their health. It’s sad that it takes so much effort to realize that getting tested is a good thing, both for yourself and for others.
Whenever I hear of people who have gotten tested or have at least decided to get tested, I always tell them that they should be proud of themselves. Because the truth is, not everyone is brave enough to do it.
And when I hear of people who know they need to but are too afraid to get tested, I just think they should be told that if they were brave enough to take the risk, then they should just suck it up and be equally brave enough to get tested. I kind of wish someone hammered that point into my head two years ago.
Wow. Two years. It doesn’t really seem that long ago. Two years has brought about a lot of change. Now, there already are Rapid HIV Tests in the country, which can give you results in no more than an hour. Back in 2008, I needed to wait over two weeks for my results.
Back then, I had no one to go through the experience with nor did I know who to approach. The traditional NGOs, you couldn’t find or get in touch with. I’m glad I took a chance on the Social Hygiene Clinic in Manila. Now, it’s so refreshing to see even my HIV-positive friends have taken on the chance to convince and accompany friends and even strangers to get tested. Baby steps, but a start nonetheless.
And bloggers? Whereas before, I couldn’t even connect myself to this blog because the HIV NGOs themselves were making it heard that they were against blogging openly about living with HIV. Why? I don’t know. Well, now there are already over 20 in my Poz Posse blog list... need I say more? Well, I don’t remember getting any apologies.
Okay, I’ve rambled. Two years since getting tested. I’m glad I did it. It was to be a huge milestone whichever way the ball rolled. I just happened to turn out HIV-positive, but it ain’t all that bad. I’m still alive and kicking, right?!
And actually, as we speak, a team of counselors and medical personnel is on the way to Puerto Galera to conduct voluntary counseling and testing there. And that it was spearheaded by someone who is not HIV-positive is the amazing thing. Times really are a-changing.
So if you’re in Puerto Galera, this Holy Week, you might want to think about getting counseled and tested for HIV. Just look for the TAKE THE TEST booth on White Beach itself. It’s totally free, and totally for you. Two years ago, I did it. And I have no regrets at all about it. Do it for yourself, too. Take the Test.
Tuesday, February 10, 2009
Lucky Me!
With the Chinese New Year ushering in the Year of the Ox, everyone’s been talking about luck. And from all the features I’ve watched, 2009 should actually be a lucky year for me, being born in the Year of the Horse. But I believe my good luck started last year, when I found out I was HIV-positive.
You know that I’ve always regarded myself as lucky despite the fact that I’m now HIV-positive. I’m lucky that it isn’t some other more severely debilitating disease that I have. I’m lucky that I found out relatively early on that I had it, and still wasn’t manifesting any symptoms. I’m lucky that I had a pretty decent CD4 count to begin with. I’m lucky that I’ve gotten through the challenges of starting on ARVs. I’m lucky that I’ve made the choices to get to where I am now. I’m lucky to have encountered the greatest people along my HIV journey.
I was lucky to have chosen to get tested at the Social Hygiene Clinic in Manila, the personnel of which have been so kind until now. I was lucky to have encountered U, who introduced and took me to the RITM more than 6 months ago. I was lucky to have come across E, who’s become my poz blogger buddy. I was lucky to have met RITM’s resident counselor, who, through some ridiculous circumstances, was instrumental in linking me to the Positivism team. I was lucky to be introduced to Baby Nathan, who’s brought more passion and inspiration to my positive life. And of course, I’ve been lucky to have all the rest of the angels along the way, who’ve been so extremely supportive and accepting.
Being HIV-positive has afforded me some opportunities that I may never have gotten if I wasn’t. I’ve rediscovered my passion for writing, which has given me the chance to get noticed. Of course, there’s this very blog, and Positivism, which have kept my momentum going. I don’t know if it’s entirely lucky, but my writing has been heard by, or more like criticized by, one of the nation’s recognizable journalists. And once again, I stand the chance of being published for international circulation.
As of today, I can say that my lucky streak continues, and has overflowed onto my professional side, as I’m being given the opportunity to work for a great company, doing the very thing I love doing, and being the very person I cannot deny I am. I only dreamed of the possibility of pursuing a path where my creativity, writing and advocacy becoming a career. And I won’t deny that I would love to work with people who know about and are, as far as I know, comfortable with my being HIV-positive, and I am completely flattered by the fact that they see potential in me.
Of course it’s going to be a huge decision to make, and for someone who is intimidated by change, a very daunting one. Getting uprooted from what has become my comfort zone of almost 5 years just leaves me scared to the bone. Before this, the biggest change in my life has been HIV. Heaven knows how I’ve gotten past it still sane, assuming of course that I have gotten past it, and that I am indeed still sane. Someone just loves throwing me curve balls I guess. And I just have to step up to the plate swinging.
So maybe luck is just one part of the equation. Maybe I have to be a bit carefree. Maybe I have to have faith. Maybe I have to muster up enough courage. Maybe I have to give in to the risks. Maybe I have to be willing to step out of the box. Then, and only then, can luck play its part. Like someone said, you can’t win the lottery if you don’t buy a ticket.
Saturday, September 27, 2008
Heading Home
Another week has passed. A seemingly regular week despite the visit to RITM last Tuesday. And, I’m doing fine with my new ARV medication. I can also say finally that I’ve gotten over the dizziness of Efavirenz. Excellent. I’ve always wanted to be able to say I’ve been able to settle into my final and for-life ARV meds, so I can write it off as a daily habit and try to get into new activities. But since it’s taken longer than I thought, I’m just maintaining what I already have, which are family, work and life as I know it, and giving my doctors and meds the time they need to figure me out.
Yesterday, I dropped by the Social Hygiene Clinic again first thing in the morning, primarily to get my second Penicillin shot for my Syphilis. I got there early, but Dra. Diana Mendoza was already there. She was attending to another guy down at the lab though, so I waited patiently upstairs.
I’ve seen for the past couple of visits there, they they’ve been busier than ever at the SHC. That early, there were other people waiting with me, when before I practically had them all to myself. Oh, no, I wasn’t jealous.
I had known and seen previously, that UNICEF had infused additional supplies and support into the SHC, in terms of HIV Rapid Test Kits, HIV Serodia Screening Kits, and other medications for Sexually Transmitted Infections. Now this is advocacy. Apparently, HIV testing has been made a standard option even for the pregnant women who get check-ups at the Manila Health Department. And why not? We must remember that HIV is not a homosexual disease. It was great to see they’re able to test more people, which should help our cause.
When Dra. Diana came up, she even had one guy with her, apparently, newly diagnosed with HIV. She invited me into the clinic, and introduced us to each other, and mentioned she’d be referring and personally taking him to the H4 Ward in San Lazaro later that day. Isn’t she the best?
She mentioned I’d been diagnosed there too, but transferred to the RITM. She was about to try to explain why I transferred from San Lazaro, but I cut her off, smiling and said “oh, never mind, never mind…” I just thought we’d spare this kid the unnecessary complications for now.
She then asked if she could just have breakfast before attending to me. Of course! She invited the other guy into her office, too, as I’d decline having already had breakfast before leaving the house that morning. I heard her telling the guy my story, my diagnosis, my constant visits there, and my journey through ARVs. I’m sure I’m a pretty good example to show this kid that life goes on, in spite of HIV.
Really having her hands full so early in the morning, without Dra. Malou there, she mixed my medications, and attended quickly to a couple of pregnant women out in the corridor, before telling me to go on into the clinic area of her room. So, bang! I got my shot, and she told me she wouldn’t hold me much longer, knowing I would be trekking to work from there, and having to go back to her new bunso or baby in her office.
It’s just really, really great have some reasons to see and visit them there. I haven’t really had time to witness or attend the support groups that hold session there, or help out in any way, but still, their warmth keeps me coming back.
So let me just put the word out again. They’re still conducting free HIV testing at the Social Hygiene Clinic of the Manila Health Department. They’re located along Quiricada Street in Manila, which is between the Bambang and Tayuman Stations of the LRT. Their building is right across the main gate of San Lazaro Hospital. For more information, you can call Dra. Malou Tan at (+632) 711-6942.
Oh and you might really want to call before you go there, just to make sure they’re not out doing field work. I’ve needed to shift my next supposedly Friday-shot-day to Thursday, because they’ll be out doing voluntary testing on members of the Philippine Coast Guard on Friday. Yeah, they’ve been that busy lately.
But they’re great. Going there has always felt like heading back home.
Monday, September 22, 2008
In My Head
What’s been running through my head lately? Efavirenz. And I’m not exaggerating. This is my third week on Efavirenz, and it’s been trying to drive me crazy.
When the doctor changed my medication from Nevirapine to Efavirenz at the RITM two weeks ago, she had warned me about the side effects. Among these, were dizziness and dreams. I was thinking anything would be better than the fever and rashes I was experiencing with Nevirapine.
So I started on Efavirenz, just once a day, taking the doctor’s advice to take it in the evening, making sure I’d have nothing important to do after taking it. I never experienced any of the dreaming, but man, she wasn’t kidding about the dizziness.
I’ve been trying to come up with some way to accurately describe the feeling, and I’ve actually come up with a number of them.
First thing that came to mind, was that it felt like I was seeing the world through someone else’s prescription lenses. It was like being drunk, but not tipsy. My mind was all a blur.
It wasn’t exactly impairing me. Rather it was even making me move faster. More efficient maybe? I’ve noticed I’ve been able to go through my morning routine faster, making me arrive at work earlier. I even walk faster. I don’t know if it’s giving me more energy or something, but the world seemed to slow down relatively. Crazy, huh?
A friend of mine may have caught a good description, saying it must feel like being on a third straight cup of coffee. I couldn’t really tell, not being a coffee drinker, but maybe, it made some sense.
I also described it as feeling like everything I do, everything I hear, everything I think, everything I see, just echoes in my head twenty times before setting in. It felt chaotic.
So that’s how I’ve been feeling for the past two weeks. Admittedly, I seem to be getting the hang of it. At this point, it’s no longer as bad as the first few days. Things in my head are clearer now, and I feel I’m getting back to my old self again. U and C did say it’d be this way, and that I should be dizziness-free anywhere between a week and a month.
So all in all, I’m pretty happy about the Efavirenz. I haven’t been having to think about it much, and have even had to worry more about my Hepatitis B and Syphilis. Well, not really.
I’ve visited the doctors at Social Hygiene Clinic again to start another round of penicillin shots for my Syphilis. As for the Hepa, the lab tests show I’m an active carrier, and the result of the latest lab test for the Hepa Viral Load hasn’t come out yet. The doctor says it’s nothing to worry about, because one of my HIV medications, Lamivudine, is actually also a medication for Hepatitis B. So we’re actually hitting two birds with one stone here.
The fortunate thing is that I haven’t had any manifestations of either of what a doctor friend of mine regards as my HIV “add-ons”. I’ve always said, having HIV is one thing, but adding Hepatitis B and Syphilis isn’t anything to be proud of. Although, it’s still far from the end of the world.
So for now, they’re just a few things more to deal with, aside from work, family and love. Just another part of the macro scale of life. No biggie.
How about you? What’s been running through your head lately?
Thursday, September 04, 2008
Blog or Not?
To blog or not to blog? That seems to be the question. I never realized how far my humble blog had reached until I personally heard some feedback from people who didn’t know that it was me. Unfortunately it was negative feedback.
They say I have given away to many details in this blog. Hmm. My mind raced trying to recall each and every entry I did. I know I never identified any other clients by name or any really distinguishing characteristics. Remember, I’m still trying to work on the rest of my alphabet friends.
Hell, if there’s any identity I’ve been giving away, it’s my own! If someone who knows me well enough puts all the little puzzle pieces together, he or she would know it was me no doubt!
Apparently, my giving away details on the hospitals and the doctors scares some pozzies. They’re afraid that if someone who reads my blog hears them talking about this doctor and that, and this hospital and that, then they’d automatically get linked to HIV and get outed. Hmm, and I thought I was paranoid.
Even the disclosure of the meaning of the term pusit was mentioned as foul, but that would no longer be solely in my hands, as it had been used and defined in news articles and television documentaries long before I was one.
Hearing all that just startled me, and really got me thinking about this blog. I had never meant for it to be a nuisance to my kind.
I thought this would be my outlet. I thought it would be a means of sharing what I am going through. I thought it would help people understand the importance of knowing your status. I thought it would emphasize the value of playing safe and staying negative. I thought that it would dispel the fears of others like me who live with HIV, but feel they are alone. I thought it would help those that are too afraid to start their own HIV journeys. I thought that it would open up our lives to others, towards more knowledge, support and understanding. I thought that it would show that we are not suffering from HIV, but rather living with it.
Personally, I think there are a lot more important things to deal with, than always having to worry about who hears what, and what that stranger thinks. The discretion of your conversations after all, will always be under your control. It must really be funny to hear all this from a self-confessed paranoid freak as myself.
So anyway, here’s my compromise. I’ve edited all my entries, removing all the doctors’ names, except those at the Social Hygiene Clinic of the Manila Health Department, because they actually WANT people to see them and get tested. The hospital names, I’ll have to keep, because I really think it would be a huge help for pozzies like me to know their options through my experiences. How I wish I had some references to guide me through the early days of my journey. It just so happened I was lucky enough to meet the right people. Others might not be that lucky.
Oh, and about the pusit thing, blame the Inquirer and ABS-CBN.
I can’t take back what I’ve written before, nor erase what people have already read. Albeit I be Will Smith in Men In Black and use my Neuralyzer to zap all those memories away.
It’s been one thing for me to lock myself in my closet, and another thing for the rest of the world to scare me into a corner. But it feels as if someone just like me just hooked the latch… from outside! Suddenly the World Wide Web feels so limiting.
I know, I know, it’s the stigma connected to HIV that those like me are afraid of. But it’s precisely the lack of knowledge due to it being such a huge taboo that fuels that stigma. Hopefully the time will come when we can openly talk about this without the fear of being burned at the stake.
But for now, I humbly submit and bid goodnight. But fear not, my story shall continue... tomorrow.
Saturday, August 30, 2008
Half A Day Off
I’m on Day 12 now of my ARV trial, still everything is green and go. And I’m thankful. Two more days, and I graduate to the higher “test”.
I had planned to take Friday off from work to accompany an online acquaintance to the RITM for his first steps since finding out he was positive. Good thing I took U’s advice and sent Ate a text message a day before confirming if the doctor would be there that day. She replied that the doctor wouldn’t be holding clinic there that Friday, and told me to come on Monday afternoon. I relayed the information to my referral-to-be, and he agreed.
So I had a bit of a change in plans, and took just the morning of Friday off instead. I needed to drop by the Social Hygiene Clinic in Manila again, to get the results of the lab tests I had done the week before, and have more tests done.
So I took the trip straight there first thing in the morning, and greeted Dr. Diana Mendoza, who was still alone when I got there. I can’t explain the warmth I feel from all of them whenever I go there. Dr. Diana, Dra. Malou and Ate Luz, and even the utility guy Kuya Gerry have been there since my day 1. I have nothing to hide, nothing else to be ashamed about, and I’m just really comfortable there.
Dr. Diana greeted me with a smile, and asked what more tests I needed done. I reminded her I was there for the lab results of my RPR and Fecalysis, which is when she called an Ate Olive and requested to check with the lab downstairs for my results. Ate Olive was sort of assisting the doctor that time, doing the things that Kuya Gerry would do before.
While waiting, Dr. Diana sat me down and eagerly asked me how I was doing. I mentioned I had just started on ARVs, which made her pleasantly surprised. She found it wonderful that I was up and about being just over a week into the trials, noticing that I was taking it well, and even said, “It didn’t even make you darker?!” Darker? Yikes, nobody told me about that side effect. Oh, well. After all, I’m dark enough. How much darker can I get?
So anyways, she went on asking how it was at the RITM, as compared to San Lazaro. I never felt afraid of admitting to them there at the Social Hygiene Clinic that I had transferred to RITM, mostly because I know they’re not tied to either. It just so happened that they were just across San Lazaro, so it made sense to refer HIV cases there for profiling. I just said that the facilities were better, to which she replied that others had given the same feedback as well. But I explained the real reason why I needed to transfer, about how I was left hanging by the San Lazaro doctors.
She was obviously surprised by the difference of the two centers in handling HIV cases, especially that one could start on ARVs without confinement or disclosing to family. She understood my sentiments, and promised she’d bring it up with the San Lazaro people.
She mentioned she knew of others who had made the same move as well, and that the dilemma with San Lazaro was making it hard for them at the SHC to keep track of their “babies”. Apparently, since they started their HIV screening program there at the Social Hygiene Clinic in November last year, they’ve had 15 cases of positive results, I being one of them. With fifteen being still a low number, they could still keep in mind by face or by codename, so they’d be constantly wondering how we were all doing by now. Technically, we would not have any need to come back to the SHC after the referral to San Lazaro. So she found it great that I was still dropping by there, just so they knew how their “baby” was. It was nice. Their concern is truly, truly genuine.
Some more minutes of chit chat later, Ate Olive came back with my results. Okay, okay, not entirely good. My Fecalysis results were fine, but the Quantitative RPR, which is a test for Syphilis, still came out reactive, of higher concentration since three months before. Yeah, yeah, I got it, and it’s not something to be proud of.
Dr. Diana initially thought of administering another round of treatment, but just told me to refer it to them at the RITM, being cautious that it may interfere with my ARVs, or that they might have a different protocol of treatment at the RITM. I agreed. I then remembered to ask her if they did Hepatitis screening there, which they didn’t. Yeah, yeah, Chronic Hepatitis B. Alas, another possible problem for me. But I’m just thankful that we’re doing the test, something that wasn’t part of the protocol at San Lazaro.
So she sent me down with Ate Olive to get a referral for a nearby private clinic which did the Hepatitis screening. I left shortly, thanking them all, with a note in my hand signed by Ate Marina of the laboratory department, which was my ticket to a discounted price at Jubilee, the private lab along Bambang, just walking distance from the SHC.
I walked there, just a couple of blocks, got pricked yet again, and headed off. It was around 9:00 am, and I was anticipating where my medicines time would catch me. So I took the LRT south to EDSA, stopping at the Metropoint Mall to buy a bottle of water just in time to down my tablet. Then back to Ortigas via MRT, just in time to catch the Robinsons mall opening. I still had a couple of hours of my half-day off, so I checked it out, the mall being on sale for the whole month of August. I ended up just buying a small drinking bottle, supposedly to lug around in my bag just enough for a gulp, in case I’d get caught again outside in time for my 9:30 habit. Oh and I got another one for U, too. Hope he likes it.
So anyway, that was that. A lot done in less than half a day. I was back at work and back to ordinary life. More updates soon. I need to do my research on Hepatitis, and refresh on Syphilis as well. I’m trying not to hide in a closet within my closet, so I’ll just take things in stride. What else could be next?
Tuesday, August 19, 2008
My Long Weekend
Yesterday, August 18 was a holiday in the Philippines, a rescheduling of Ninoy Aquino Day. A long weekend for most. But I had a longer weekend than the rest. I took the day off today, not for a vacation, but to pay the RITM another visit.
Today, I was out of the house by 7:30 am. My appointment at the RITM was still in the afternoon, but I had my day all planned out. I first made my way to the Social Hygiene Clinic at the Manila Health Department, primarily to have my fecalysis and quantitative RPR done, but also to pay the dear doctors a visit.
Only Dr. Diana Mendoza was there, attending to a younger group getting tested for something. After she was done, she looked my way and immediately recognized and greeted me. She asked me if I needed anything, guessing my quantitative RPR almost magically. I nodded, and asked if they did stool tests as well. She said yes, and immediately asked Kuya, the utility guy to run to the lab and request that they do my fecalysis, apparently because I had arrived past the deadline for accepting samples. She wrote out my lab referrals, taking those given to me by the RITM. I had gone there knowing that they conducted the tests for less than the usual cost, but surprisingly, Dr. Diana endorsed them and they were given for free! Lucky me!
So down I went to the lab, where they extracted some blood, and literally took the shit outta me. Well I had my stool sample ready, and had been checking constantly on the way there if it was already stinking up my bag. I was glad to leave my crap there. On the way out, Dr. Diana asked me how I was, complimenting that I looked good. I thanked her and headed off, saying I’d call for a follow-up of the results. This will truly always be my first HIV home.
From there, I took the LRT out to EDSA, and the MRT to Magallanes, where I made my way again via bus to the Alabang area. Arriving in Alabang early, I took my lunch first at Jollibee, a local counterpart of McDonald’s, craving from everything from a Champ to a Jolly Spaghetti, but eventually settling for a Palabok and a large order of Fries. Yum. Not being known for slow eating, I was done in about 20 minutes, with still more time to spare before my afternoon appointment, so I checked out the Alabang Starmall while waiting, but found nothing much to see after less than an hour. It was past 12 noon, so I decided to just head for the RITM and hang out there.
Getting to the RITM, I headed for the OPD room, finding only Ate there. She showed me my CD4 results… 328. I then apologized for being too early, and ushered her off to lunch while offering to man her post somewhat. Sitting there alone, I started computing:
2 months ago, CD4 count = 343
Present, CD4 count = 328
Difference = 15
Decrease = 15 / 2 months = 7.5 per month
At that rate, I would reach the critical CD4 level of 200 after… 1 year, 5 months
Am I obsessed with math or what?! I was meaning for that computation to help me decide whether or not to start on ARVs, but thought maybe my logic didn’t apply to this case, so I shoved it all out the window and just cleared my head.
Shortly after, Ate arrived, as well as some other clients. One has been living positive for 15 years, and was doing voluntary counseling for other clients there. One was like me, CD4 above 300, had never been on ARVs, but wished to start. One was just weeks on ARVs and having his side effects checked. Another one was new, first time at the RITM, armed only with his test results for being positive with HIV. We all got talking while waiting for the doctor, and came to a point where we were sharing our experiences with the newbie, who was clearly still unable to accept his condition. I honestly think it helped him a lot being with and talking to others like him, as he really calmed down and opened up by the time the doctor came around.
Being the first one there, I was served first, as the doctor showed me again my CD4 results. She told me all my other tests were clear, and asked me again whether or not I wanted to start on ARVs. Without flinching, I said yes.
So here I am, in bed with my medicines beside me. One tablet is a combination of Lamivudine and Zidovudine, to be taken twice a day at 12 hour intervals. The doctor guaranteed there are no usual side effects. The other tablet however, Nevirapine, is a different story. Usual side effects are rashes, nausea, vomiting, diarrhea, plus nightmares and hallucinations, i think. I’m supposed to take it once a day for the next two weeks, and guard for the side effects. If everything is good, it increases to twice a day, monitoring closely again for another two weeks. I saw one client there who had the rashes from this same tablet, so I know what to look out for. U says he had the same reaction to it as well. Sigh.
Okay it’s exactly 9:30 pm now, and here goes my first dosage… cheers.
Okay, done. And as it goes, once I start this, it will be a lifetime commitment, and I cannot miss a beat. I’m planning to get a watch with an alarm, just to make sure I never ever forget. I want to get one for U, too.
So anyways, I’ll have more details again tomorrow. For now, I want to rest early, so I can adjust to my new… schedule. I’m putting my laptop away, as I usually have it beside me in bed, just to make sure I don’t beat it up in case I have any nightmares and stuff.
I’m hoping I don’t have any adverse reactions to it, or at least it not be too bad. Wish me luck… good night.
Sunday, August 17, 2008
A Day w/o U
RITM, day 2. This entry may as well have been entitled another day with… needles. Imagine me cringing.
It just happened to fall on another Thursday. I had been scheduled by Ate and the doctor for my lab tests at the RITM. I had planned on taking another day off from work, but reconsidered, thinking I’d save my leave credits for other more important appointments. I had been given the option of showing up early at the RITM. And I mean early. As in 6:00 am. Early enough so I’d be able to make my way back in time for work at 8:30. At least that was the plan.
Instead, I mistakenly left my cellphone in silent mode, missing my wakeup call by about 45 minutes. Instead of getting up at 4:45 am, I ended up realizing my mistake at 5:30 am, and just rushed to get out of the house. I had planned on making the first trip of the MRT, but obviously missed it. I was able to take the train at 6:00, not too bad. I love traveling that early in the morning. It was still pre-rush hour, a big advantage for the claustophobe like me. It was around a 20-minute train ride, from which I rushed down to street level to hop on a bus plying the Alabang Skyway route. I was just trying to recall how U took me to the RITM last Monday. Plus it made sense, it was a route straight to Alabang via the Skyway, meaning less stops, making for a faster trip.
It was a long but quick bus ride, and I tried to take note of landmarks on the way. We passed by the Nichols Exchange, the farthest south I was really familiar with, since that was where my first boyfriend was from. Further on down, we entered the skyway, and passed the Raya residential development which looks amazing. We passed the Hapee Toothpaste plant, the SM Mall in Bicutan, an finally exited at what looked like a newly constructed Alabang Exit which led into the Filinvest Corporate City. I got down where U and I did previously, at he Alabang Central Terminal.
I decided to walk towards the RITM instead of riding, primarily because I get a better sense of direction when I’m on foot. I retraced the steps we took last Monday, walking towards the Festival Mall and up towards the hill where the RITM was situated. It was a long walk, and I made it before 7:00 am, but remained unconvinced that I had taken the shortest way.
I first walked towards the comfort room, to relieve myself of the pee I’d had brewing in time for my urinalysis. I needed to keep it in almost the whole way, since I’ve been known to suffer from a shy bladder at times. I whipped the bottle out and filled it up mid-stream as advised. Then off I went to the Laboratory Department, which U had pointed out to me during our earlier visit. There was still no one answering the doorbell, so I sat down on a bench in the hall trying to cool off after the long walk. A few minutes later a lady passed me and walked into the lab, shortly after peeping out the window asking if I was a client. I handed her my lab referrals and the urine sample as she ushered me in. I sat down in the torture chair, putting my arm down on the armrest ready for my sentence. She looked at the list of test to do… viral load, CD4 count, genotyping, CBC, hepatitis profiling, and urinalysis… and whipped out four vials to fill. Four vials? That’s worse than the three I filled up at the Manila Health Department months earlier. This would be a record for me. Or so I thought. I looked away as she started to push the needle into my arm. I’m getting used to the feeling, but still can’t stand seeing it. Next thing I know, she’s asking me to hand her two more vials from the table next to me. Four? Plus two? Another record broken… but I have to admit it wasn’t that bad. So there I was, six vials of blood lighter, a survivor.
I walked next door to the X-ray Department, again no one was there. There’d been a sign saying the personnel were at the canteen, so again I sat down and waited. The old lady in charge soon showed up, and I was in and out of there in a flash.
Last stop, some test called PPD. Research now tells me it stands for Purified Protein Derivative, a skin test for tuberculosis. I had been pointed to the emergency room for it, from where I was pointed to the Pharmacy. I showed the referral, and I was given a box of something called Biocin, and told to return it after. Weird. Not something I’d usually hear at a pharmacy. So I returned to the E.R. and handed it to the nurse, who asked for my chart. Chart? What chart? I had nothing else with me but the referral, but was told they couldn’t do the test without the chart. I tried texting Ate, but received no reply. U had given me her number beforehand in case I encountered some problems. So I had to wait, thankfully she arrived early, around 8:30 am.
Needless to say at this point, I didn’t make it to work on time. So anyways, Ate accompanied me back to the E.R., and gave her personal referral in order to push the test through. So apparently, PPD is a skin test. And I must say skin tests hurt. I got a bump full of the medicine in my arm, had the nurse draw a circle around the test site, plus a note on a piece of tape on my arm with the date and time it was administered. Bad enough that I couldn’t wet my arm for three days, but I had to have the pen mark and the tape on me at work. Hmmm. I have some explaining to do.
Take note again, that all the tests I had done were free at the RITM, except for the P120.00 I paid for the Biocin thingy. I’m told the test will be free everytime, as oppose to that at San Lazaro, where follow-up CD4 counts cost something like P4,000.00, and viral load tests P6,000.00. That should be more than enough savings to pay for the additional transport to the RITM.
I realized I didn’t bump into any other fellow clients, Ate being the first and only person I encountered from the OPD that day. I was out of the RITM by 9:00 am, already having sent a text message to work saying I would be late. I walked back to the highway, but this time following my instincts and passing a road I hadn’t tried before. I think I got the right and shortest route this time. I made the trip back, via the bus and the MRT again, and reached work past 10:00.
Another amazing day, not even half through, but already got a lot done. Just two tests left, a fecalysis and RPR titer. A stool sample would spoil in the length of the trip, while the latter test, they didn’t have at the RITM. I’m thinking of going back to Dra. Malou at the Manila Health Department for those tests, as well as to pay them a visit and update them on my status. I’m planning to do that Tuesday morning, another day I’m taking off from work. A bloody and shitty Tuesday, literally.
I have another visit to the RITM scheduled on Tuesday afternoon for a consultation with the doctor. I’ll find out the results of the tests, plus my options for ARVs. So it’ll be another busy week again for me. My verdict is coming… again. Wish me luck!
Thursday, June 05, 2008
Brain Overload
My Thursdays still have not managed to let my guard down. Again, it was H4 day. I was out of the house by 7:00 am, and a tricycle and a jeepney ride later, I reached the HIV ward of San Lazaro Hospital. It was just 8:00 in the morning, and lo and behold, I was first on the list!
I don't think they expected anyone that early, so the nurse just sat me down by the seats by the door of the building to take a breather, before they took down my vitals and while they finished their duties and reports.
After some time, more people poured in, and I gamely sat in their midst. It was not exactly in my comfort zone to mingle, but it was nice. I was finding it a bit hard to keep up, but I surprised myself by being comfortable in that crowd. There were around 20 of us there, and I got acquainted with a number of them, as they introduced me as "the new one".
I noticed a couple of them whip out what looked like white bank passbooks. I read what was written. Health Regimen Booklet. Hmmm, so I figure this is how their ARVs are monitored. I wasn't looking forward to getting one of my own though.
By 9:00 am, the doctors came. My usual doctor wasn't there. So the other doctor and a new one were on hand. They started off making rounds of the ward and checking on those confined. By about 9:30, they headed for the doctors' office and I was called in shortly.
She already had my folder on her desk, but still asked my patient code. She then flipped through another folder, where she was looking for my CD4 test results. Finding it and taking it from the folder, she sat down and looked at me sternly. She asked me some old questions again, like who knows, if I had a partner, and how I'm dealing. She reiterated the need to tell someone in the family. Rebriefing I guess.
At this point, she stared at my results, and asked me what I wanted to hear. Whether I wanted to hear the number flat out, or just if it was bad or good. I sort of giggled a bit at the question, and just said I wanted it all. She still held back a bit, looked at me, and said it was below 350. My mind raced at that point, but I kept a straight face. Normal is above 500, so it's not that good. But how far below 350? The critical 200 was below 350. Absolute zero was below 350, too. Tell me! Tell me!
Finally, she said it. My CD4 count is 343. Not entirely bad, but not good either. Almost midway between normal 500 and critical 200. She then said that she'd advise I get started on ARVs. But not before more counselling. And not before I have a support system behind me. Family preferably. Friends possibly. Anyone really. I said I was planning to tell my sister, and realized this development just made it more urgent. A lot to think about in the coming days.
The doctor then sent me off, but not before leaving me her mobile number, so I could contact her when I was ready to get counselling with whoever I chose.
I was honestly a bit defeated that I wasn't doing as well as I was feeling. I bid goodbye to my new friends out front before heading off back to work. I didn't even drop by the Social Hygiene Center. I was planning to just check in on Dra. Malou and the gang there, but suddenly didn't feel like it. Maybe another time, when I was less distracted.
I'm a bit glad that I have work to think about, and colleagues to laugh it up with and get stressed out by. But I won't be avoiding this for long. I'm left with a lot to think about right now. Head... hurts... hehehe.
Wednesday, May 14, 2008
Take the Test
The last time I was there, my new friends at the Social Hygiene Clinic, Dr. Malou, Dr. Diana, and Nurse Luz asked me to help get the word out on getting tested. So here goes...
The Social Hygiene Center of the Manila Health Department continues to offer free HIV and other STI testing until further notice. Yes, guys, girls and everything in between... it's free. They intially had the free testing for the duration of March, but thanks to other sponsors, they continue to be able to offer it indefinitely. Please, please, please take advantage.
For those interested to check their HIV and reproductive health status, you can visit the Social Hygiene Clinic from Mondays to Thursdays from around 8:30 am to 3:00 pm, and on Friday mornings from 8:30 to 11:00 am. Sorry guys, they're closed on weekends and holidays.
Why do they want everyone to get tested? Because absolutely anyone exposed to the risks can get HIV. And there are no really reliable symptoms to tell that you have it. The only way to really know, is to get tested. It's not knowing that spreads the virus.
Look at me, I never thought I had it. You could never tell. But I did. Now that I know, I will make sure that the virus stops with me. Imagine how many others I might have endangered, had I not found out.
Just so you know, you will be asked to give your real name and a code name. Only your code name will be attached to the blood samples sent to the lab for testing. And only Dr. Malou has access to the files linking your real name with the code name. They know how delicate the situation can be, and how important anonymity is to us.
They will also give you pre- and post-test counselling, just so you're prepared and informed. Yes, you can ask questions. Results are claimed from Dr. Malou as well after a few days. She even gives her personal cellphone number so you can follow-up your results.
The Social Hygiene Clinic is located on the second floor of the Manila Health Department. It has a separate entrance on the right side of the building, so it's very discreet. The Manila Health Department is along Quiricada Street in Manila, across the San Lazaro Hospital main gate. The area is located between the LRT stations at Bambang and Tayuman. If you have other questions, you can call the Social Hygiene Clinic at (+632) 711-6942.
Please consider our plea. If you need someone to go there with you, let me know. I'd gladly help.
For everyone else not in Manila or the Philippines, think about doing it too in your own city or country.
Please, please, please. They're not there to judge us. They want the best for us. But they need our help. They care. We should, too.
Thursday, May 08, 2008
The Thursday
Walking towards the HIV ward, I didn’t know what to expect. How big a crowd would I be in there? Trust me, I’m no good in crowds. I was just relieved that I didn’t see a line formed a block away from the door.
Walking up the steps, I passed some seats where people were waiting. There were about 5 or 6 of them there, but they were all a blur to me. I was trying not to make eye contact. Paranoia, I’m guessing.
I approached the nurse up front, and said the doctor asked me to drop by. The nurse asked if I was there for a checkup. I answered that I didn’t think so. She said that she’d list me down if I was there for a check-up. I just know that the doctor was expecting me back today to give her the results of my lab tests. It didn’t seem like a real checkup for me. At least, not the checkup that I was familiar with. She said the doctor wasn’t there yet, and asked me to sit in the waiting area.
So I sat. There were three others there, a woman with a younger guy on my right, and a guy across me. I saw the woman was wearing a face mask, and realized despite this, I couldn’t tell which one was the patient. I noticed the guy across me trying to work in a smile while looking my way. Was he flirting? Or was he just being friendly? Was he new here too? Or was he laughing at me for being the latest victim? Paranoia again. Turns out he was poz too. I realized that when he was called into the doctor’s office.
One after the other, they rest of the people there, less than 20 of them, got called in for their checkup. They would spend just between 5 and 10 minutes each inside. Not bad. Routine monitoring, I guessed.
Then one older guy approached me. He introduced himself. Let’s call him Y. He didn’t seem like he was there for a checkup. Sort of supervising… and mingling. He seemed to know everyone, and asked what I was there for, and asked me to have myself put on the list out front. He said it was standard procedure, despite my trying to explain that I didn’t think I was there for a checkup technically. But he came across a bit territorial to be honest, so I just followed his advice.
The nurse took down all my information – patient code, code name, weight, temperature, blood pressure – after which Y led me back to the waiting area. He was a bit more relaxed now, and started a conversation. Apparently, he’s been poz for a while now, but definitely in the peak of health, and was there to oversee the procedures. Sort of assistants to the doctors. For public relations and other concerns if I understood right. He was having such a difficult time asking me if I was a confirmed poz, which I found funny. So I just blurted out, “Yes, I’m HIV positive”. I think I relieved him of his burden. He explained most of the going-ons there that moment, and introduced some of the personalities there. My nerves eased up at this point and he got me talking a bit about myself.
In the midst of our conversation, the doctor walked in. Seeing me, she smiled and signaled to wait a bit, probably to give her time to settle down. The next time she stuck her head out from the door of the doctors’ office, she asked what my patient code was. A few more minutes later she called me in. So I was right, I didn’t have to line up with the others in the “checkup” queue. Whew.
Sitting down in front of her desk, I handed her my lab results, as she ranted about why she was late that day. She took a look, and said I was ok. Say what? She repeated that my lab work says I’m doing good, and just reminded me that I was scheduled for my CD4 test on the 29th. I wasn't even in there for five minutes. But anyways, another whew from me. I was just happy that I was ok.
So from there, she sent me off, and I left some final words with Y who I passed. He took my number and gave me his, as he said he’d like to invite me to join their group sometime. Something called Pinoy Plus. I’ll tell you more about that when I find more out.
So I left, a bit triumphant. I just had to spread the good news, so I dropped by Dr. Malou Tan at the Social Hygeine Clinic across the street. She was happy, and I was happy. Nurse Luz and Dr. Diana were there as well, and they were happy to see me, too. Dr. Malou is great. I feel she truly cares. She’s like a mom to me now. Maybe she can be my HIV mom.
So anyways, it was 10:30 am, and I had accomplished a lot. I started my journey to work. Back to my regular life. Or my former regular life. The parallel world I live in, where Thursdays are just like any ordinary day.
Thursday, May 01, 2008
Testing... Testing...
I had read online about some free HIV testing in the Manila area for the month of March, and decided to take advantage. It was March 31st, and I didn't want to let the chance pass. I had taken the day off from work to trek down to the Social Hygiene Clinic of the Manila Health Office in the San Lazaro vicinity in Manila. Not exactly convenient for someone who lives in Quezon City, but I made the effort.
Ok, I'll admit it. I had scouted the place out the Friday prior to that day. Ok, ok, maybe not “scouted”. More like I was too chicken to go in and get it done. Hahaha. So by the time the 31st came around, I was a bit familiar with the area, which gave me less reason not to go. Not to mention I had mustered up a bit more guts to actually step into the building. Always a good thing.
I followed all the instructions in the forum post. Across San Lazaro Hospital. Yep, it was there, the Manila Health Office. Side entrance. A bit creepy to be honest. Second floor. It reminded me of some old public school building, which isn’t exactly bad. Look for Dr. Malou. Found her.
Dra. Malou Tan. She was nice and cordial, and just asked me a few questions before a very short briefing on the test. Another guy had come in a few minutes later, also to get tested, so she asked me if I could wait so we’d go to the lab together. No problemo. She talked to the other guy while I waited out in the hall. I even remember wondering why his briefing lasted much longer than mine. Probably he was higher risk. Shrug.
So after their talk, she took us down to the lab where the blood extraction was to take place. Big, big issue for me. I’ll tell you all about my fear of needles later. So anyways, I went first. I sat down, closed my eyes and braced myself. “I’m ready!”, I thought to myself. And even before I could bite my lip and think “Stick it! Stick it!”, the nurse said “Ipit…”, to tell me to press the cotton against my skin. It’s over? Geesh… I wasn’t even done with my prayer. One big “Whew!” from me.
From there, the doctor gave me her number and told me to check back with her the following week for the release of the results. I headed home, triumphant, having conquered my fear. Believe me, I had graduation music playing in my head. Not for long.
