To blog or not to blog? That seems to be the question. I never realized how far my humble blog had reached until I personally heard some feedback from people who didn’t know that it was me. Unfortunately it was negative feedback.
They say I have given away to many details in this blog. Hmm. My mind raced trying to recall each and every entry I did. I know I never identified any other clients by name or any really distinguishing characteristics. Remember, I’m still trying to work on the rest of my alphabet friends.
Hell, if there’s any identity I’ve been giving away, it’s my own! If someone who knows me well enough puts all the little puzzle pieces together, he or she would know it was me no doubt!
Apparently, my giving away details on the hospitals and the doctors scares some pozzies. They’re afraid that if someone who reads my blog hears them talking about this doctor and that, and this hospital and that, then they’d automatically get linked to HIV and get outed. Hmm, and I thought I was paranoid.
Even the disclosure of the meaning of the term pusit was mentioned as foul, but that would no longer be solely in my hands, as it had been used and defined in news articles and television documentaries long before I was one.
Hearing all that just startled me, and really got me thinking about this blog. I had never meant for it to be a nuisance to my kind.
I thought this would be my outlet. I thought it would be a means of sharing what I am going through. I thought it would help people understand the importance of knowing your status. I thought it would emphasize the value of playing safe and staying negative. I thought that it would dispel the fears of others like me who live with HIV, but feel they are alone. I thought it would help those that are too afraid to start their own HIV journeys. I thought that it would open up our lives to others, towards more knowledge, support and understanding. I thought that it would show that we are not suffering from HIV, but rather living with it.
Personally, I think there are a lot more important things to deal with, than always having to worry about who hears what, and what that stranger thinks. The discretion of your conversations after all, will always be under your control. It must really be funny to hear all this from a self-confessed paranoid freak as myself.
So anyway, here’s my compromise. I’ve edited all my entries, removing all the doctors’ names, except those at the Social Hygiene Clinic of the Manila Health Department, because they actually WANT people to see them and get tested. The hospital names, I’ll have to keep, because I really think it would be a huge help for pozzies like me to know their options through my experiences. How I wish I had some references to guide me through the early days of my journey. It just so happened I was lucky enough to meet the right people. Others might not be that lucky.
Oh, and about the pusit thing, blame the Inquirer and ABS-CBN.
I can’t take back what I’ve written before, nor erase what people have already read. Albeit I be Will Smith in Men In Black and use my Neuralyzer to zap all those memories away.
It’s been one thing for me to lock myself in my closet, and another thing for the rest of the world to scare me into a corner. But it feels as if someone just like me just hooked the latch… from outside! Suddenly the World Wide Web feels so limiting.
I know, I know, it’s the stigma connected to HIV that those like me are afraid of. But it’s precisely the lack of knowledge due to it being such a huge taboo that fuels that stigma. Hopefully the time will come when we can openly talk about this without the fear of being burned at the stake.
But for now, I humbly submit and bid goodnight. But fear not, my story shall continue... tomorrow.
Thursday, September 04, 2008
Blog or Not?
Wednesday, June 04, 2008
Speaking Up
I'm certainly the type of person who accepts criticism well. Hell, I spend most of my life laughing at myself. That's not bad, it's fun. I live on humility, and that's one thing I'm proud of.
When I started this blog, there was always the option not to allow comments to be posted on my entires. But hey, why the hell wouldn't I? Even now, each comment left has an option for me to delete it, something that I don't think I'll do unless it's something really really offensive or irrelevant.
So with that said, I'm not planning on deleting any comments posted... But that doesn't mean I can't react. Hehehe.
This morning, I opened the day with three new comments left on one of my entries, apparently by one and the same person. I just felt the need to... uhm, I don't know what better word to use... defend myself. Okay, maybe clarify would be a good word. So here goes my... clarification.
Anonymous said...
i am positive too, and i am very happy when the doctor told me that im positive. i didnt flt bad or had a regret for all the things ive doned. coz it has doned. so now, im on the stage of exploring things in life. the way you address your blog. it seems until now you still not accepted the gift you have.
by the way im from quezon city also. im 25 when i found out that im positive and now im 28. i told it to my frend when i realized that im positive. thats why sometimes, i have the time to share my life with her if i need to. coz i you need someone who can be there for you if you need somebody to cry on. somebody will say to you. "IKAW KASI" you know that. its more happier if someone will address it to you and made you realized that life is so great. so have a friend.
if you need someone to talked to. im here. hehehe. but i know you will keep it to yourself about that gift. remember its not a disease its a gift. you should be the first one to accept urself before someone will accept u. ako ung anonymous lahat sa blog mo
And PinoyPoz says...
Okay, I admit I wasn't exactly ecstatic to find out I was HIV positive, I mean honestly, who would be? But I was far from being depressed. Surprised a bit maybe... but I've been dealing with it.
Regret is not something I normally have, I'm not the type. I think I've mentioned that in one of my earlier entries. The nearest thing to regret that I feel right now is due to the reality of the possibility that I may have brought harm to those that I have encountered. I would rather die to keep them safe.
I can honestly say that I have not shed a single tear of sadness since I found out that I was poz. Just please hold the sappy song and the mushy movies, okay? As such, I haven't even considered the need to have a friend to be my shoulder to cry on. Why cry? Life is great! And I knew that long before I found out I was poz, and not because someone told me. :-)
Living with HIV still remains something that one cannot brag about or be proud of. Not in this world that's been brewed by generations that lack understanding, and that foster stigma and discrimination for our kind. So until the world has a major attitude change, or the self-righteous die out, confidentiality and anonymity are my friends.
HIV is a disease, but I regard it as a blessing. I mentioned it before in an earlier post. It's not normal to have HIV, but it's not abnormal. It's not ordinary. It's extraordinary. I'm special. And it's an honor to be able to share my life with you.
So there. I'm just not sure who misunderstood who. If Anonymous was reading the same blog I was writing. If he or she didn't read from the beginning. If some things were getting lost in translation.
I admit I'm no expert on living with HIV, but then give me a break. I'm just barely two months into this, I still have a lot to learn, but I think I've been doing great for a beginner. My whole HIV life is unfolding through this blog, so you tell me how I'm doing. If this isn't accepting it, I don't know what else is.
Klaro? Hehehe...
