This was on TV in the morning news today. HIV once again is the star. Oddly enough, this was not a health segment or anything close to that. It was really just meant to be bizarre news.
So HIV makes for bizarre news these days?
Well, see for yourself...
Click here if you can't see the video.
Okay, don't nosebleed on me. Luckily, I speak Spanish... no I'm kidding. I did research.
So basically, a doctor in Brazil was getting tired of being burglarized while at work. The solution? She took HIV-infected syringes home with her and built a "wall of HIV" to stop people jumping her fence.
Of course, seeing syringes might not have been enough. So she put a warning sign on her fence that reads, "Wall with HIV-positive blood. Don't climb it."
Hmmmmm. Wherever this woman lives, burglars must be pretty educated to know exactly what HIV is. Oh, but then this begs the question whether they are educated enough to read and understand the sign in the first place.
But kudos to this doctor for taking advantage of the myths of HIV that have actually been haunting the Philippines for years now. Remember, around a decade ago maybe, rumors that instilled fear in Pinoy moviegoers of being suddenly pricked by HIV-infected needles in theater seats? Oh... reminiscing.
But really, her method probably won't scare away those who already are HIV-positive, those who know that her contaminants will probably not be fresh enough after being exposed to air and sunlight for days and days, those who take a cutter to the tape that's holding her syringes, and those who can see that there are gaps in the fence that are clear of her prickly things. Darn, doctors ain't all that smart, huh?
In the end, the Homeowners' Association called the police, who said they couldn't do anything about it. So the Homeowners' Association gave her 5 days to take down her HIV-tainted needles or get fined.
So yeah, HIV is in the news once again, hilariously bizarre as this story may be. But to all of us living with HIV, no of-FENCE.
Tuesday, August 23, 2011
No Of-Fence
Saturday, January 01, 2011
Holiday Count Down
The eve of Christmas, mass and dinner with my mom’s side of the family. And on Christmas itself, home recovering from the holiday stress. And then back to work for the few days before the turn of the year. That’s how it’s been in previous years. But this year was quite different. Good or bad? Let’s see.
The eve of Christmas was still marked off for the family. But more than my being stranded between the generations, this year I’d be the star. Oh wait, more like I’d have the star. The Li’l Bastard was to make his first appearance as the family’s new bunso at his first Christmas. He was dressed in a little grey shirt with blue piping that matched my own outfit. New places and new faces, kept him quite overwhelmed.
I successfully weaseled out of mass since pets aren’t allowed in the chapel. So we walked around the village to while away the time. Then it was time for a change of costume, as Santa Paws of course! Yes, the Li’l Bastard loves to dress up. And naturally, he became center of attention, the fashionable little whiny pup that always had his left paw up like a limp-wristed twink. Hahaha. Oh well. Mana mana.
By the end of the evening, I was just glad Christmas only happens once a year. Oi, pardon me for thinking that way as early as Christmas Eve.
Christmas Day, I had planned to stay home. But no. I had find internet access because I had work to do. Work?! I knowwwww! Work! So I spent the morning in a coffee shop at the mall, stalling enough through my iced mocha to get everything done. And then I headed back in time for lunch and to spend some home time.
The 26th and 27th continued in the same fashion. No plans, just rest. I did go out for a while to bump into a former college professor of mine to catch up on stuff over a couple of beers, but that was it. Recharge. Recharge.
I had the 28th planned out. I badly needed to go to RITM for med refill… as in two weeks ago. I had already borrowed a month’s supply of ARVs from W, with whom I share the same combination. So like a workday, I left the house at 7:00 am, but this time braved the MRT. Thankfully, it wasn’t as jam-packed as the usual workday rush hour. I actually got to RITM in under an hour, which I found amazing.
There, I texted an online friend. We were eyeballing. Meeting was easy since there were just two of us there at the clinic that early. We talked a bit. He told me about deciding to get tested after noticing he was getting sick a lot, and because he had come from a relationship with a particularly promiscuous guy. I found that amazing that he instantly thought HIV may be the culprit, not your normal reaction. He was barely a month on ARVs, and was there to complete some other baseline tests.
Ate came in and arranged for my refill. Leafing through my records, she pointed out some results. My viral load. The viral load is a quantitative measure of the HIV virus in the blood. The lower that is, the better. I’d never seen my results before. Apparently, my viral load, which is measured annually, has been UNDETECTABLE both in 2009 and 2010. I know I should’ve been jumping for joy, but I was probably in disbelief. Really?! Then my lifestyle, the medicines, and the yoga are working that well. Wow, well I’ll take that.
I left my new friend at the clinic while I went to the pharmacy. Mission accomplished. Ate also sent me to the back office, to submit some stuff for Philhealth. Oi, Philhealth is a long story...
So anyway, that done, I tagged along with my new friend for his errands. Back at the clinic, we caught the other nurse, Ate S. While figuring out my friend’s ARVs, she mentioned they’d started ARVs at the same time. Say what?! Sa kanya ako nahawa eh! I was aghast. Did they have unprotected sex? Did we have a pusit nurse all along?
Well, not quite. Apparently, Ate S suffered from an accidental needle prick injury while administering a PPD test to my friend on a previous visit. So however small the risk, she needed to have a prophylaxis, which meant a month of the very ARVs we‘re taking, just as a precaution. Talk about immersing yourself in the patient’s world, huh? A firsthand experience of ARVs. Not everyone can claim that. But she was in good spirits and was already joking about it.
Oh, and Ate S’ short stint with the RITM is about to end. She said she’d no longer be with us in 2011. Nope, nothing to do with the accident. She’s going to go to med school. I was saddened by the news a bit, she grew into such a competent nurse for us, but I know it’s for the best. You’ll never know, she might come back as our Doc S someday. Hmmm.
From there, we headed off and had lunch at the mall. An early lunch, he was, after all, coming from fasting for all his blood tests. From there, I headed back home to prepare to spend the afternoon with the hubby. Mmm.
Wednesday, the 29th, was Yoga for Life day as usual. But just after lunch, I was off on a mission in Manila. BFF and I met up and took the LRT to Tayuman. We walked a couple of blocks, and finally found our destination. YAFA. Youth AIDS Filipinas Alliance, an HIV advocacy group.
We found the address, but weren’t sure, since it didn’t look right. We knocked. The door was unlocked and opened up to a stairway. We walked up. Tao po? Someone walked out in just his underwear. Oh, welcoming committee? Hehe. Well, we seemed to catch them at the least perfect time. Let’s put things in context, they had scheduled a general cleaning that day, and there was a power interruption, thus, the outfit, or lack thereof.
As soon as they gathered their composure, we got the honor of sitting down with the famous DyingYoung. He told us all about YAFA, and BFF was able to ask his questions about one of their projects. It was actually very interesting, and reinforced the respect I have for YAFA. For such a young group, they’ve really been making waves.
From there, I got BFF to accompany me to the Manila Social Hygiene Clinic. It’s maybe been more than a year since I was last there. Nurse Malou Tan is no longer connected to the SHC. But I got to see Dra. Diana Mendoza, rebond and all. I don’t even think she remembered my name. I left some Positivism brochures with her and asked how the SHC was doing.
They still have free HIV rapid testing there at the Manila SHC, so she asked that we refer people to them for screening. They’re open Mondays to Thursdays, 8:00 am to 3:00 pm, and Friday mornings till noon.
And from there, we took the LRT-MRT route to Ortigas. After a quick snack in Shangrila, we headed to yoga early. Yoga was special today. A hundred and eight sun salutations. Yes, 108 forward bends, halfway lifts, pushups down, and upward- & downward-facing dogs. Was I confident I could do it? Not particularly. But I was going to try. And try I did.
After it all, up to today, two days after, biceps and triceps, quads and calves, back and chest, basically from the top of my neck to the soles of my feet, I’m sore. Sore in a good way. And the fulfillment of getting through the 108 sun salutations is phenomenal. Roarrrrr!
So that was my itinerary for the week leading up to the turn of the year. Sounds like a lot for just a week, especially for me. If that’s going to set the stage for 2011, then it’s going to be a busy one. Bring it on. Bring it on. With that, I hope everyone has all their fingers intact, and had a very Happy New Year. It's 1-1-11. Nagpaputok ka ba?
Tuesday, July 27, 2010
You’ve Got AIDS!
You can only imagine how hard it is to be told "You have AIDS". I don't think you'll know how you would react just until it happens to you. I myself couldn't imagine it... at least until it happened. Well, sort of. I wasn't told that I had AIDS, just that I had HIV. I don’t know if that's a big diff, though.
But okay, that’s settled. It is hard to be on the receiving end of a positive result. But how hard is it to tell someone he or she’s got AIDS? Is it easier? Is it harder? Hmmm.
Personally, I’d rather be on the receiving end of tragic news. I just don’t think I’m nurturing or sane enough to handle someone else’s depression, drama, regret, fury, fear, paranoia, and whatever else they may have. Not on a regular basis at least.
So I applaud the people who get to do the loathsome job of telling someone, “Hey, you’ve got AIDS!”
Only heaven knows if there’s any particularly good or effective way to break that kind of news. But I got one idea from The Family Guy animated series to do it. Take a look.
Dr. Hartman: I don't know how to tell you this, Mr. Devanney, so I'll let these guys do it.
Enter, Peter Griffin and the Barbershop Quartet
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
You have AIDS! (Yes, you have AIDS)
I hate to tell you, boy
that you have AIDS! (You got the AIDS)
You may have caught it
When you stuck that filthy needle in here
Or maybe all that unprotected sex put you here
It isn't clear...
But what we're certain of is...
You have AIDS! (Yes, you have AIDS)
Not HIV, but full-blown AIDS!
Be sure that you see...
That this is not HIV
But full-blown AIDS!
Not HIV, but really...
full-blown AIDS!
I'm sorry, I wish it was something less serious
But it's AIDS
You've got the AIDS!
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Okay, fine, so maybe that wasn’t the best idea. But you gotta admit, it would’ve been one hell of a show! But for now, when it comes to telling someone he’s got AIDS... I’ll just leave that to the experts.
Post-Script:
On a more serious note, of course, these days, AIDS and HIV aren't that much different. Not everyone who's been put under the AIDS list is on his or her deathbed. They can always recover and do better than the HIV-and-not-AIDS ones, and sometimes be even healthier than people who don't even have HIV! Yep, life can go on... for everyone! :-)
Tuesday, April 13, 2010
Shrill Thrill of April
April is almost halfway through. Argh. Was I unconscious or something? Where did it all go? Well I guess it can be attributed to all the long weekends that we’ve been having, thanks to Holy Week and National Heroes Day, which gave us 4- and 3-day weekends respectively. So much free time, but oddly enough I haven’t been able to blog. Not really a case of not having anything to blog about. Just wasn’t in the mood I guess. Or busy maybe. But time to recap.
Holy Week started the very first day of April. I was actually supposed to be out of town, in Puerto Galera to be exact, to help out with the Take the Test project, spearheaded by Jethro, an advocate and friend of E. The team had been cramming for it the previous week, they more than me, to get everything set. I could only help out with what I was moderately good at, which is words and numbers.
At the last minute, E told me constraints in the budget meant they’d have to cut some of the team from being on site. Of course, priority would be given to the nurses, medical technologists, and peer counselors. It was a little sacrifice for me, towards the success of the project. But a bit of a relief as well, because I dreaded the Holy Week travel rush and the need for kapal-muks had I played GRO for the event. Whew. It would’ve been the first Holy Week ever that I would be spending outside Metro Manila, too.
So instead of going out of town, I stayed in the city. I always treasure the peace in the city whenever everyone’s out town. I love it. But that weekend was not at all boring.
While Holy Thursday was spent at home, there was also planning going on for a Good Friday thingy. What was up? A photo-tour of Manila! So with me and 2 of my pozzie kids, and Papi with 2 of his friends, the 6 of us braved the summer heat to trek through Luneta and Intramuros, and have lunch in Binondo with a couple more pozzie friends catching up with us.
Armed with hardly anything more than a camera each, we soon succumbed to the afternoon heat, not managing to continue the walk in the afternoon. We would’ve been able to squeeze in more sights probably had we started earlier in the day. It was just too hot. So we spent the afternoon indoors just hanging out. I left for home past 10 in the evening. It was a truly fun, tiring and wholesome day spent with friends. Not bad for a Good Friday.
Most of Black Saturday was spent resting, while Easter Sunday saw me having lunch with the family. I finally got to taste the Papi-recommended Crispy Dinuguan of Kanin Club. Absolutely yummy. I also tagged along to do an ocular of the La Mesa Eco-park. For me, there were just too many people there, and it didn’t live up to my expectations of a peaceful and quiet place to spend a day. I was just itching to go home and sleep.
The day was saved by news from E that the Take the Test project was a huge success in Galera. Aside from the voluntary counseling and testing conducted, he said it was the HIV seminar held daily on the beach front that made a huge impact. He says we reached even more people than the million-peso-budgeted efforts of other NGOs and even the DOH. Whoa... I can’t wait to hear more about how it went.
After just four days of work, came another long weekend. Friday was National Heroes Day, another non-working holiday. Something was up. Should I go or not? Fine, someone helped convince me to go. It was to be another pozzie gathering Friday night.
Unlike previous ones, this was going to be at someone’s residence, and not with my usual pozzie group. So even more than usual, my wallflower mode was so on. It was really just a chill night, with some fab singers, some flashy dancers, some overly okray acts, and a whole lot of candles all around. And with more than twenty of us there, things were bound to overflow. If we started out in the living room, but by the end of the evening, most of us were outdoors in front of the house and seated along the sidewalk. Good thing the neighbors didn’t complain.
Although I was my usual quiet self, I did get to meet a lot of new pozzies I hadn’t known or had never seen before. I mean, yeah Papi and some of my “kids” and friends were there, and some I’d just met before or knew by name, but a lot of others I had never seen or been introduced to.
I think my most nega moment of the night was when one of the RITM doctors showed up. I didn’t really know who he was, but heard people calling him “Doc”. Nope, I wasn’t nega just based on having a doctor there. There was just one point in the evening that he called my attention upon seeing me reach for a bud of chicharon, saying I shouldn’t be eating it because it could cause high bood pressure. Seriously?
My mind was reeling. Excuse me? Have we even been introduced? Why exactly was I the only one whose attention you called, when I wasn’t the only one eating chicharon in the first place? Do you have my medical records with you? Did you see something alarming? And while you’re at it, maybe you should go the extra mile and point out every one of us who was either drinking alcohol or smoking, right?
If he was kidding, it wasn't a funny delivery at all. And if he was serious, hello?! There was just some sort of conflict between the professional and personal encounters of being a doctor. Anyway, I was able to keep my mouth shut. And yes, I still ate that chicharon. Bah!
So there, I had my gimmick quota as early as Friday night. I spent most of Saturday at home, highlighted by dinner and coffee with BFF, which I absolutely enjoyed. It was sort of us catching up, and me sending him off as well because... Wheeeee! Basta, I won’t be seeing him for a while because he’ll be... uhm... busy. Wheeeee!
And Sunday was spent dreading yet another Monday once again. Okay, I guess now I know where all the weekends went. Aside from my new addiction... agh, yes I admit… I’m B.I.T.C.H and I’m addicted to an online game... huhuhu... seems like I’ve been pretty busy after all. Some shrill but so much thrill... So far, that’s been April!
Saturday, June 06, 2009
Rewarded
It was Thursday, and I’d just gotten home from work. I headed straight for my room as usual, but was surprised to find an envelope on my little desk. Hmm, I got mail? Not a very common occurrence. Just from the envelope, I sort of had an idea of what it was. And I was surprised. And excited.
Welcome to a privileged lifestyle! it said on the envelope. We find ways. O... M... G... it’s something from BDO!
It was a BDO Rewards card! I admit, I’m an SM loyalist, along with its affiliates which include BDO of course. I have been one ever since I was a child. Back in the day, I even had what I think was called a Junior Saver’s Account. In fact, I started so early with them that I needed to reopen my account because I could no longer mimic my childhood writing signature. So apparently, they’ve now decided to reward me for my loyalty.
I must admit that during the initial stages with this HIV thing, I did fall into the mentality that I should not make any major investments because of the perceived uncertainty of my future. But then, I’ve always been like that. I do want a lot of things, but it takes a real need before I buy things. I don’t shop a lot. I hate shopping. I’m not rich either. But I live within my means.
What I am able to do though because of this, is put aside a part of what I make into my savings account with BDO. Despite having to pay bills and spend on daily living, I still try to put aside around half of what I make every month. So, I do believe they’ve noticed the movements in that savings account, and that’s what prompted them to think of me as a potential Rewardee.
This HIV thing has also been more than enough inspiration to put aside for in-case-of-emergency moments. I just think of it as taking responsibility for myself. A lifeline, so to speak. Just in case. And along with this BDO Rewards thingy, came exactly that, a Lifeline. The Lifeline Rescue Program, that is.
With the coverage of SM’s Lifeline Rescue Program, P150.00 assures me of a quick connection to Lifeline Rescue’s medical emergency hotline for a whole year. As a Reward, I save P850.00 from the regular rate of P1,000.00. Not bad, diba?
This covers free ambulance service during medical emergencies. The membership provides free access to Lifeline’s medical emergency quick response service, but covers only from the time a member calls for an ambulance until proper endorsement to the emergency room of the receiving hospital. At least you stand a better chance, right?
Quick-response services are available within the Greater Metro Manila Area, including Antipolo, Cainta and Taytay in Rizal, Bacoor in Cavite, Meycauayan, Obando and San Jose del Monte in Bulacan, and San Pedro in Laguna. More than enough, I think.
The membership also covers around-the-clock phone consultations during medical emergencies. You also get free use of ambulance equipment and medicines... aba, dapat lang.
Though membership is non-transferable, I actually noticed that the form I filled up had several more spaces available for other names or beneficiaries if needed. My mom already had her own so I didn’t need to include her in mine. Now that I’ve paid, all I need to do is wait for and fill up the membership enrollment form which they’ll be sending.
Sooooo, friendly friends, if something bad happens to me... knock on wood... call Lifeline Rescue Services’ hotline at 16-911. Other hotline numbers are 839-2520 to 30.
Pusit or not, maybe you wanna get something like this for yourself, too? For me, it’s just one thing less I need to worry about. At least for a year. Now that’s a reward in itself.
Monday, January 26, 2009
Emergency
I know I said I wasn’t excited to watch what they came up with, and I maintain that I was not. But I just needed to watch how GMA7’s television show, Emergency, treated the story on Baby Nathan and his family, mostly to critique it. I was hoping that maybe somehow it was a case of the end not justifying the means.
So I stayed up Friday night waiting for it after their late evening newscast Saksi. My wait stretched till past midnight, which is when the newscast ended. The hosts of Saksi let out a teaser for the following show, mentioning a one-year old kid who was HIV positive. This is it.
Emergency started with a run down of their stories. The first would be a feature on the feast of Santo Niño in Tondo, and the second was actually a feature on transmission of sexually-transmitted diseases through modes other than sex. Bingo! That’s the story I was waiting for.
While the Santo Niño story was running, I was actually switching back and forth between that and Project Runway on ETC. I was really at a point where I was fighting my ARVs to stay up, until finally, at around 1:00 am, my semi-consciousness and half-shut eyes managed to catch the end of the Santo Niño thing. A commercial break later, the segment started.
The first part involved a guy who claimed he got an STD from borrowing a friend’s pair of briefs. A doctor checked him and diagnosed it to be gonorrhea. Upon further investigation, the doctor was able to figure out the source. I apologize, but I just found it funny how the guy failed to take into consideration that he had unprotected sex with a number of girls prior to his tulo incident.
A couple of doctors were interviewed explaining the possible routes of transmission of STDs. And one of them was our doctor at the RITM, Dra. Ditangco herself!
The next part showed Paulo, the one-year old kid, who had HIV. Of course it was our Baby Nathan! I was pleased to see that they were able to protect the identities of Baby Nathan and his family for the whole segment, showing just body shots and half faces. And, oh my! He’s really improved even more since I last saw him. It was also wonderful to see Baby Nathan squirming in his Mom’s lap during one shot, which tells me he’s doing well.
The Mom told the story about choosing to go on with her pregnancy despite being told that the Baby could be born with HIV. The Dad also relayed how the Baby got breastfed, not knowing that it was another possible route for infection.
The worst part about the segment was when the voiceover said that HIV was destroying the Baby’s body and that the virus was causing his body to deteriorate. It wasn’t so badly said, but would’ve been more proper if explained that HIV was not doing the damage itself, but only leaving the body more susceptible to infections that cause conditions such as diarrhea, which was what actually caused the loss of body mass. Again, the Baby’s condition was made to look tragic, when the reality is that he’s actually now recovering, and can eventually get his old strength back, or maybe get even better than before.
The last part of the segment just drove their misleading point across. Here, Jun, a nurse, contracted HIV from an accidental needle prick while in his occupational environment. They went on to say that he is now unable to work, and instead is now on medication with ARVs.
Hmm, looking at the footage, he wasn’t bedridden, weak or anything near that, not to be able to work. Maybe they should’ve pointed out that working in hospitals, in particular, would be a bad idea for people with HIV, because of the infections we are more susceptible to. Maybe that’s the real reason he had to stop working as a nurse. But otherwise, he could find a job in another field. I believe it should’ve been mentioned that he is still capable of working, despite the ARVs and despite the HIV. Take me for example, right?
Anyways, with all that said, the segment was over in less than 10 minutes. Again, a bit pitiful, but sadly expected.
I turned the television off and headed for bed, left with the thought that maybe the Health Department or some authority should take on the task of monitoring, looking through and verifying all documentaries and stories about HIV and AIDS, so as to prevent random discharges of wrongly-worded and misleading information such as this. Anyways, it was just my last ditch effort of a brilliant idea before fading off and meeting the sandman. Zzz.
Again, awareness is the key, but it would be much better if the public is armed with the truthful and proper information. Now that, I believe, is the real Emergency.
Friday, December 12, 2008
A Positive Christmas
It was Friday, but I took the day off from work. I still woke up early though, to take a trip to the Social Hygiene Clinic to get the results of my Quantitative RPR. Nothing alarming, just part of the monitoring for my syphilis.
From there I headed straight to my favorite barber who gave me my signature semi-kalbo, after which I treated myself to a hairspa. Having not that much hair left and having a hairspa doesn’t make sense, but I mostly do it for the massage that comes with it. It borders between being extremely relaxing and slightly arousing. I don’t even know if he’s really good at it, or if I just find him that hot. It feels so good that I get chills down my spine. And so much chills that I get confused whether I’m truly aroused, or just need to pee. Mmm.
It was just 11:00 am. So did I take a leave just to get my lab results and treat myself to a haircut? No, of course not. That was just the beginning. All in preparation for a big day, my first Christmas Party at the RITM.
I was feeling good today. My face was cooperating, with my breakouts taking a bit of a break. Even my sniffles were in on it, as my runny nose held up for the day. Okay so the haircut was half because I needed it, and half because I wanted to make a good first impression. Good impression, my ass! Was I planning to flirt?! No, not planning. Let’s just say I was open to the possibility. No, no. More like I needed to feel confident. Whatever.
I was able to convince U to go, so we went together, buying some pitchi-pitchi and some bread and dip on the way, for our contribution to the potluck celebration. Coming from all the way north, and going all the way south, it was expected that we’d be late. Let’s just say call time was 10:00 am, and we got there at 1:30 pm. Talk about Filipino time.
Walking in to the tune of Hep-Hep-Hooray being played by some of the pusits, I carefully stayed unnoticed while I looked around, wondering if I’d see someone I wasn’t expecting to see. Someone who I’d made contact with, who I didn’t know had HIV, too. Fortunately, other than the guys and some gals I’d met at the RITM and San Lazaro before, our resident counselor, the Doctor and the Ates, no other familiar faces. A big Whew! from me.
After a run down the buffet, I sat down and faded into my wall flower mode. Quiet, insignificant, observant, hiding behind a huge column in the middle of the hall, away from all the action. I looked the crowd over a second time between bites, checking everyone out. I have been asked by others if there really are a lot of hot guys there. I just tease, saying SECRET! I’m sorry you couldn’t make it! Hehehe.
And, though it was a party, and as much as I’d liked to share the experience, I didn’t expect any pictures to be taken. I myself opted against bringing a camera with me, from fear of the pictures having to look like this...
That aint lookin' so Christmasy, huh? Hahahahaha.
But more importantly, other than a couple of guys I noticed in face masks, everyone looked every bit normal and ordinary as the rest of the world. There were guys, there were girls, even guys who looked like girls... nothing new to me. There were kids running around, some RITM personnel hanging out and some affected friends in the mix, so much so that no one could probably identify correctly who was HIV positive and who wasn’t. I couldn’t tell myself just by looking.
I just had a moment of bother when one guy was introduced to me. It was a guy who I’ve mentioned in one of my posts before, and not in an entirely good way. Let’s just say I gave my honest opinion not expecting to meet him face to face. But he was nice enough to smile and say something to the tune of yeah, I know him already, which left me speechless. I realize I’m treading the waters between fame and notoriety as The Blogger. Good thing I snapped out of the paranoid spell soon enough.
From across the room, I noticed someone looking my way. It was Baby Nathan’s dad. He cradled the Baby who seemed frightened by all the noise, flashing his familiar smile. I was caught off guard by how he recognized me from that far away, but I nodded and smiled back, and understood, they were doing okay.
A young lady walked by, a couple of minutes later, shook my hand, said thank you and walked off. I later realized she was the Baby’s mom, who I was seeing and meeting for the first time. It was surprising how young she looked, but again refreshing how positive her aura was, even belting out more than a handful of songs on the videoke machine.
Daddy walked over to my corner a bit later, updating me that the Baby was doing fine. The Baby was taken off the ARVs that were causing him fevers, and was shifted to my same pills probably, which he apparently melts in his mouth like candy. Yum. I thought to myself, now he’s really getting his childhood back. I couldn’t help but smile.
Several videoke songs, a fabulous production number from a t-back bearing babe, a couple of hours more of food, zero word from work, an exchanging of gifts, some bulge- and finger-related speculations about my penis size – something I’ve come to be comfortable with and proud of, ahem, ahem – and a refill of my ARV supply later, the crowd had thinned and it was time to go.
U and I headed back up north the way we came, had dinner at the mall – like we didn’t get enough nutrition already – and chatted over some hot chocolate into the night, until we went our own ways at about 10:30 pm.
Looking the day over, the Grinch in me has to admit that it was a positive day. And if this, being my first Christmas party of the year, is a sign of things to come, I think I’ll have a happy Christmas this year.
Christmas is supposed to be about family, and be it as small as Baby Nathan’s family, or as big as the community that came out to celebrate, I felt how it was to have a family. It’s only today that I can finally say that I do feel the spirit of Christmas.
A Positively Merry Christmas to us all!
Wednesday, October 22, 2008
Kuya (Big Brother)
Having worked extra over the weekend, I had a day and a half worth of vacation that I could offset with a workday. So in the midst of an agreement with E, who is part of the Positivism.ph team, we agreed to head for the RITM yesterday, Tuesday. More on Positivism.ph in a later post.
My personal agenda at the RITM would be to get a med reload. I only had enough medicines to last me till tonight, so one way or another I was bound to go. But my main purpose would be to just hang around with E and the resident counselor, who is also part of the Positivism.ph team.
So hang around I did. I helped out with some paperwork – literally – no typing or writing or thinking. Just collating and stapling. Mmm, repetitive work, gotta love it. Lunch with the counselor was great, too. I tried hard to keep up with her appetite. Hehehe.
E sent me a message that a friend of his was coming in. He asked me to talk to him, because he wasn’t feeling well. Me? Why me? Was this counseling? Yikes. The shy guy in me was trying to file an appeal. Ok, ok, let’s see what we can do.
Once I figured out which one he was, I took the counselor’s seat, and E's friend took a seat in front “my” desk. It turns out he was experiencing fevers after being on Nevirapine for about a week. Well, well, I knew exactly how that went, so that gave me a bit of confidence. I found myself opening up, and putting him at ease that what he was going through was a normal part of the process.
Hey, I actually thought I was good at that! A second guy actually came in having the same complaints, so again, I shared my story. It felt good being able to help in my own little way. Very kuya-like of me.
Later I received news that T was coming, with three new recruits. T is an old friend. An old friend who I was going to meet for the first time. So he would be an old-new friend. Confused? You see we’d been chatting online for more than five years now, if I’m not mistaken. There were plans to meet which never pushed through, but we never lost touch. Until finally, we discovered each other again, in the poz world this time.
So finally, finally, finally, we met. The only thing was, he didn’t realize it was me. I thought maybe it was too much for me to expect us to be instantly chummy, so I didn’t pursue it, and just stuck by E, who kept exchanging jokes, quips and the occasional elbow with me. T’s three new recruits had gone through their paces with the doctor, and he invited us all for dinner at nearby Festival Mall, still oblivious of who I was exactly.
We headed to the mall, but let the newbies take the car. E, his friend and I trekked on foot, since we couldn’t all fit. Getting there, we had dinner, where I showed off my new found appetite. We were almost through with dinner before T finally figured out who I was, which was what broke the ice for us. He’s been reading this blog regularly, so he knows what things I’ve been going through. He probably sees me as a willing guinea pig for the poz journey.
I wasn’t the kuya or big brother of the group age-wise, but when it came to the HIV journey, my mere six-months already made me the kuya of kuyas. So on the trip home, T encouraged his new recruits to bombard me with all the questions they had, which really weren’t much. I think it was enough for them to see that T, E and I were smiling, laughing, and living... enough to see that we were normal... enough to assure them that they, too, would be okay.
I was the last to get off at Guadalupe, before which T thanked me for having this blog and sharing my experiences. T is to be thanked, too, for the work that he does with these kids. I’ve never been a kuya in my life. But regardless of whether it made me feel old, I realized last night, it felt swell to be a kuya.
Wednesday, September 24, 2008
Bye to Zido
IUPAC name 1-4-azido-5-hydroxymethyl tetrahydrofuran-2-yl-5-methylpyrimidine-2,4-dione. Formula C10H13N5O4. Zidovudine or azidothymidine (AZT), also called ZDV is a nucleoside analog reverse transcriptase inhibitor (NRTI), a type of antiretroviral drug. It was the first approved for treatment of HIV. It is also sold under the names Retrovir and Retrovis, and as an ingredient in Combivir, Epzicom and Trizivir.
Zidovudine was the first drug approved for the treatment of AIDS and HIV infection. Jerome Horwitz of Barbara Ann Karmanos Cancer Institute and Wayne State University School of Medicine first synthesized AZT in 1964, under a US National Institutes of Health (NIH) grant. AZT was originally intended to treat cancer, but was shelved after it proved ineffective in treating cancer in mice.
In February 1985, Samuel Broder, Hiroaki Mitsuya, and Robert Yarchoan, three scientists in the National Cancer Institute (NCI), collaborating with Janet Rideout and several other scientists at Burroughs Wellcome (now GlaxoSmithKline), started working on it as an AIDS drug. After showing that this drug was an effective agent against HIV in vitro, the NCI team conducted the initial phase 1 clinical trial that provided evidence that it could increase CD4 counts in AIDS patients.
Modern treatment regimens typically use lower dosages (e.g. 300 mg) two times a day. As of 1996, AZT, like other antiretroviral drugs, is almost always used as part of highly active antiretroviral therapy (HAART). That is, it is combined with other drugs in order to prevent mutation of HIV into an AZT-resistant form.
Common side effects of AZT include nausea, headache, changes in body fat, and discoloration of fingernails and toenails. More severe side effects include anemia and bone marrow suppression, which can be overcome using erythropoietin or darbepoetin treatments. These unwanted side effects might be caused by the sensitivity of the alpha-DNA polymerase in the cell mitochondria. AZT has been shown to work additively or synergistically with many anti-HIV agents; however, acyclovir and ribavirin decrease the antiviral effect of AZT. Drugs that inhibit hepatic glucuronidation, such as indomethacin, acetylsalicylic acid (Aspirin) and trimethoprim, decrease the elimination rate and increase the toxicity.
AZT does not destroy the HIV infection, but only delays the progression of the disease and the replication of virus, even at very high doses. During prolonged AZT treatment HIV has the ability to gain an increased resistance to AZT by mutation of the reverse transcriptase. A study showed that AZT could not impede the resumption of virus production, and eventually cells treated with AZT produced viruses as much as the untreated cells. So as to slow the development of resistance, it is generally recommended that AZT be given in combination with another reverse transcriptase inhibitor and an antiretroviral from another group, such as a protease inhibitor or a non-nucleoside reverse transcriptase inhibitor.
I had been on my first month on the Lamivudine+Zidovudine combination, so I had been scheduled by the doctor yesterday for a complete blood count. I took the afternoon off from work, and trekked to the RITM, getting there at exactly 2:00 pm. I was sent straight to the lab to have my blood extracted, so the results would be available the same time the doctor was ready to meet me. I never realized it took as little as less than 30 minutes to complete a CBC lab test. Technology rocks.
After hanging out a couple of hours with the other clients there, even having an afternoon snack with the regular counselor, the results were finally realeased and the doctor had finished all the other clients before me. I was a bit surprised by the verdict, another change in medication. The doctor and Ate discussed a bit and agreed they were to make the change. Apparently, my Hemoglobin count had dropped from 140+ units to 100+ units, a side effect of Zidovudine. Ate even pointed out that my lips were a bit pale, something I never noticed myself. The doctor looked under my lower eyelid, and said it still wasn't too noticeable. But yes, they'd shift me over to another medication.
I hadn't brought what was left of my Lamu+Zido meds, so I promised I'd bring it on my next visit. I was given in place of it, solo Lamivudine tablets, plus the new one, Tenofovir, under the brand name Viread. It all seemed like a great move, as the doctor pointed out I'd just have to drink all three of my medications once a day in the evening. One tablet of Efavirenz, two tiny tablets of Lamivudine, and one teardrop-shaped tablet of Tenofovir. Not too bad. When I asked if I'd need to watch out for any side effects, the doctor said there are none. Even better.
So last night, I started my new nightly habit. The doctor advised me to comeback after about three months for another CBC, just to make sure my Hemoglobin has bounced back, but no other problems should be encountered. Hopefully, things will be all good.
Goodbye, Zidovudine.
Monday, September 08, 2008
Dream, Dream, Dream
I haven’t really been able to blog lately, not by any choice of my own, I was just literally physically unable to blog.
I had taken the trip out to the RITM mid-week last week. Half of my purpose was to introduce my new friend to the RITM, as he’d be starting his own journey very soon. The other half of my purpose was to update them on how I was doing with my meds.
I had started my double dose September 2nd, and was experiencing low-grade fevers the two days following. Sadly we didn’t catch the doctor, since she had a personal emergency she had needed to take care of. Instead Ate contacted her via mobile, and it was agreed that I’d try to continue the medication, and if anything else comes up or gets worse, I’d just inform them and they’d decide whether I was to stop or not.
And indeed, worse was it. Friday caught me down with the weather at work, where I was struggling to get through even the final few hours at work. I had a fever, which felt worse than my usual. I didn’t have my thermometer with me, so I had no way of telling. I had even gone up to the lobby of an upper floor to rest my eyes. I was feeling that bad.
Getting home, I locked myself in my room, and my trusty thermometer read a 39-degree fever. Still I wouldn’t give up and continued taking my medicines that evening.
Saturday morning came, and I still had the fever, this time it was up to 40 degrees. I realized that my thermometer could only read up to 42 degrees, so I was pretty alarmed. I didn’t even mind that it was just 7 in the morning, I sent a text message to Ate, to which she immediately replied for me to stop the Nevirapine and report to the RITM come Monday.
You’d think my problems were over, but the fever was hell. I felt half-dead and half-dying. Having no airconditioning, no fan, layered with a sweater and a blanket did nothing. The chills were coming from deep inside. I felt I needed to swallow a blanket or kill whatever vents were inside me. I just felt helpless.
I was locked in my room most of the weekend, tossing and turning in discomfort, sneaking in an occasional cold shower to disperse the fever I was experiencing. Monday, I called in to work sick, and just headed to the RITM in the afternoon. I still had a significant fever, and my body just felt so heavy. Each step felt ten times more of an effort to make. I figure I must’ve been walking like I had a hangover.
The verdict? The doctor concluded I was showing allergic reactions to the Nevirapine. Though I didn’t really see signs of being counted as the 103rd Dalmatian, the doctor did notice I was reddish around the face, something which I do not normally get, as I can only be dark or darker. I was just lucky enough I guess that it was an even color, something less noticeable that the kinds of rashes I’ve seen.
I ended up surrendering what Nevirapine I had left, which was one unopened bottle and about half of another, trading it in for my new best friend, Efavirenz. Yes, yes, the dreaming drug. One huge difference is that it’s only taken once a day. Some things I was told to watch out for are dizziness and the dreams, of course. Some people describe the dreams as very realistic, in full-color, plus they say the dreams are usually resumed in cases where you wake up in the middle of one. The doctor also warned me that in standard drug tests, Efavirenz causes false positives for Marijuana, which is never a good thing. So if ever the need arises, it should be advised to the laboratory prior, so they can proceed to a confirmatory test, for which it should turn out negative. Good thing I’m not due to get my license renewed for another three years.
As I’m writing this, I’m feeling a bit better. Less of a headache, and lower fever. I’m hoping this is a good sign, so I can report back to work tomorrow. For now, I’m almost due for my first dose of my new regimen. And boy, am I ready to dream!
Wednesday, September 03, 2008
Low, Low, Low
I haven’t really been feeling well today. Yesterday was my first day on the full dose of ARVs, and I woke up this morning with a low-grade fever. Using my dad’s old thermometer, I took a reading of around 37.7 degrees Celsius at 5:30 in the morning.
Getting a fever doesn’t usually get me down, but it being one of the Tres Marias I was told to watch out for – rashes, fever and flu – I needed to consider if I had to do something about it.
I’m still hoping the fever was just a fluke. The extreme changes in weather here, from wet and cold in the evening and hot and humid in the daytime, may just have gotten to me. Plus my mom is nursing a flu, and one of my bosses is, too, and still reporting to work. Those just might be some factors.
So with that, I decided I’d take it. The doctor specifically told me not to experiment with Paracetamols should a fever happen, so I didn’t. I was feeling a bit better on the way to work, having been able to work up a sweat on the morning walk to and from the bus routes.
Just before my 9:30 schedule this morning, I got tasked to play messenger, to take a trip to Makati to personally deliver a check to an important contractor. This wasn’t the best day, but I did it.
I drank my meds and headed off in the heat of the Manila horizon. I was there and back in under two hours. We ate lunch here at the office, and here I am. Feeling better. No fever, no rashes, no flu, but terribly sleepy.
Good thing I have a trip to the RITM scheduled tomorrow afternoon. Primarily, I’ll be accompanying a new friend of mine to introduce him to the places and the people and get him started on his "journey". I’ll be able to consult my personal concerns with the doctor as well, regarding the lab results, the fever and the ARVs.
Tomorrow will be another long day.
Sunday, August 24, 2008
Day 6
I’m now on day 6 of my anti-retroviral treatment, and I have no big news to tell you. And that’s a good thing. I’ve been on Lamivudine+Zidovudine twice a day, and Nevirapine once a day.
I was wondering why I was given different meds from the other guy who was starting the same time I was. We had compared notes while at the RITM, and realized I got the Nevirapine which was notorious for rashes, while he got the Efaverenz which was known for dreams, nightmares and hallucinations. I was thinking to myself, “I want to dream, too!”, but just left it all up to fate.
It’s the Nevirapine that I was told to be wary of, because of some possible side effects. But so far, on a once a day dosage, nothing. No gagging, no vomiting, no diarrhea, no fever, no flu, no rashes.
One thing I noticed, is that I get hungry more easily since I started on the meds. It was so bad that I couldn’t wait to get home for dinner Friday night. I had to pass by the local Julie’s Bakery and get me a couple of pieces of bread which I chowed down on walking home. So might this make me put on weight? I hope so. This might just be the answer to my long standing problem of being a hardgainer.
At the RITM last Tuesday, the doctor asked me what time would be most convenient for me to take the meds. Once in the morning, once in the evening at a 12-hour interval. Initially I chose 6:30 am and 6:30 pm, imagining I’d take the meds after breakfast in the morning, and before leaving work in the evening. I eventually changed my mind, and decided on a 9:30 habit. So what happens is I take my meds in the morning while at work, and in the evening, just before going to bed.
The 9:30 habit was a good choice, as I noticed I didn’t feel anything unusual even while at work. Saturday night, though, I realized another side effect that Nevirapine may be having on me.
C, U, and I (Yes… surprise, surprise… C & U knew each other and didn’t tell me until recently… talk about connivance…) met up for some late snacks at the local mall yesterday evening, so for the first time since getting on ARVs, I was up past my usual bedtime of 10:00 pm. I just felt soooo sleepy after taking my medications, but not to the point of dizziness, as I was able to make my way home without problems. So in a couple of days, once I start taking the regular dose of Nevirapine, which is twice a day, I’ll have to figure out how to handle the drowsiness while at work.
U especially had been checking up on me regularly, having experienced the side effects of Nevirapine himself. He and C were both on Efaverenz themselves.
So for now, everything is good. I’m still able to work, still able to do chores, and still able to eat anything I want. Still no one can tell just by looking at me that I have HIV, nor that I’m on ARV medication. I still remain most wary about any signs of rashes. I constantly check my inner arms and forearms, where I am most fair and think that early signs of rashes will be most noticeable.
Watch out for my next big step.
Tuesday, August 19, 2008
My Long Weekend
Yesterday, August 18 was a holiday in the Philippines, a rescheduling of Ninoy Aquino Day. A long weekend for most. But I had a longer weekend than the rest. I took the day off today, not for a vacation, but to pay the RITM another visit.
Today, I was out of the house by 7:30 am. My appointment at the RITM was still in the afternoon, but I had my day all planned out. I first made my way to the Social Hygiene Clinic at the Manila Health Department, primarily to have my fecalysis and quantitative RPR done, but also to pay the dear doctors a visit.
Only Dr. Diana Mendoza was there, attending to a younger group getting tested for something. After she was done, she looked my way and immediately recognized and greeted me. She asked me if I needed anything, guessing my quantitative RPR almost magically. I nodded, and asked if they did stool tests as well. She said yes, and immediately asked Kuya, the utility guy to run to the lab and request that they do my fecalysis, apparently because I had arrived past the deadline for accepting samples. She wrote out my lab referrals, taking those given to me by the RITM. I had gone there knowing that they conducted the tests for less than the usual cost, but surprisingly, Dr. Diana endorsed them and they were given for free! Lucky me!
So down I went to the lab, where they extracted some blood, and literally took the shit outta me. Well I had my stool sample ready, and had been checking constantly on the way there if it was already stinking up my bag. I was glad to leave my crap there. On the way out, Dr. Diana asked me how I was, complimenting that I looked good. I thanked her and headed off, saying I’d call for a follow-up of the results. This will truly always be my first HIV home.
From there, I took the LRT out to EDSA, and the MRT to Magallanes, where I made my way again via bus to the Alabang area. Arriving in Alabang early, I took my lunch first at Jollibee, a local counterpart of McDonald’s, craving from everything from a Champ to a Jolly Spaghetti, but eventually settling for a Palabok and a large order of Fries. Yum. Not being known for slow eating, I was done in about 20 minutes, with still more time to spare before my afternoon appointment, so I checked out the Alabang Starmall while waiting, but found nothing much to see after less than an hour. It was past 12 noon, so I decided to just head for the RITM and hang out there.
Getting to the RITM, I headed for the OPD room, finding only Ate there. She showed me my CD4 results… 328. I then apologized for being too early, and ushered her off to lunch while offering to man her post somewhat. Sitting there alone, I started computing:
2 months ago, CD4 count = 343
Present, CD4 count = 328
Difference = 15
Decrease = 15 / 2 months = 7.5 per month
At that rate, I would reach the critical CD4 level of 200 after… 1 year, 5 months
Am I obsessed with math or what?! I was meaning for that computation to help me decide whether or not to start on ARVs, but thought maybe my logic didn’t apply to this case, so I shoved it all out the window and just cleared my head.
Shortly after, Ate arrived, as well as some other clients. One has been living positive for 15 years, and was doing voluntary counseling for other clients there. One was like me, CD4 above 300, had never been on ARVs, but wished to start. One was just weeks on ARVs and having his side effects checked. Another one was new, first time at the RITM, armed only with his test results for being positive with HIV. We all got talking while waiting for the doctor, and came to a point where we were sharing our experiences with the newbie, who was clearly still unable to accept his condition. I honestly think it helped him a lot being with and talking to others like him, as he really calmed down and opened up by the time the doctor came around.
Being the first one there, I was served first, as the doctor showed me again my CD4 results. She told me all my other tests were clear, and asked me again whether or not I wanted to start on ARVs. Without flinching, I said yes.
So here I am, in bed with my medicines beside me. One tablet is a combination of Lamivudine and Zidovudine, to be taken twice a day at 12 hour intervals. The doctor guaranteed there are no usual side effects. The other tablet however, Nevirapine, is a different story. Usual side effects are rashes, nausea, vomiting, diarrhea, plus nightmares and hallucinations, i think. I’m supposed to take it once a day for the next two weeks, and guard for the side effects. If everything is good, it increases to twice a day, monitoring closely again for another two weeks. I saw one client there who had the rashes from this same tablet, so I know what to look out for. U says he had the same reaction to it as well. Sigh.
Okay it’s exactly 9:30 pm now, and here goes my first dosage… cheers.
Okay, done. And as it goes, once I start this, it will be a lifetime commitment, and I cannot miss a beat. I’m planning to get a watch with an alarm, just to make sure I never ever forget. I want to get one for U, too.
So anyways, I’ll have more details again tomorrow. For now, I want to rest early, so I can adjust to my new… schedule. I’m putting my laptop away, as I usually have it beside me in bed, just to make sure I don’t beat it up in case I have any nightmares and stuff.
I’m hoping I don’t have any adverse reactions to it, or at least it not be too bad. Wish me luck… good night.
Sunday, August 17, 2008
A Day w/o U
RITM, day 2. This entry may as well have been entitled another day with… needles. Imagine me cringing.
It just happened to fall on another Thursday. I had been scheduled by Ate and the doctor for my lab tests at the RITM. I had planned on taking another day off from work, but reconsidered, thinking I’d save my leave credits for other more important appointments. I had been given the option of showing up early at the RITM. And I mean early. As in 6:00 am. Early enough so I’d be able to make my way back in time for work at 8:30. At least that was the plan.
Instead, I mistakenly left my cellphone in silent mode, missing my wakeup call by about 45 minutes. Instead of getting up at 4:45 am, I ended up realizing my mistake at 5:30 am, and just rushed to get out of the house. I had planned on making the first trip of the MRT, but obviously missed it. I was able to take the train at 6:00, not too bad. I love traveling that early in the morning. It was still pre-rush hour, a big advantage for the claustophobe like me. It was around a 20-minute train ride, from which I rushed down to street level to hop on a bus plying the Alabang Skyway route. I was just trying to recall how U took me to the RITM last Monday. Plus it made sense, it was a route straight to Alabang via the Skyway, meaning less stops, making for a faster trip.
It was a long but quick bus ride, and I tried to take note of landmarks on the way. We passed by the Nichols Exchange, the farthest south I was really familiar with, since that was where my first boyfriend was from. Further on down, we entered the skyway, and passed the Raya residential development which looks amazing. We passed the Hapee Toothpaste plant, the SM Mall in Bicutan, an finally exited at what looked like a newly constructed Alabang Exit which led into the Filinvest Corporate City. I got down where U and I did previously, at he Alabang Central Terminal.
I decided to walk towards the RITM instead of riding, primarily because I get a better sense of direction when I’m on foot. I retraced the steps we took last Monday, walking towards the Festival Mall and up towards the hill where the RITM was situated. It was a long walk, and I made it before 7:00 am, but remained unconvinced that I had taken the shortest way.
I first walked towards the comfort room, to relieve myself of the pee I’d had brewing in time for my urinalysis. I needed to keep it in almost the whole way, since I’ve been known to suffer from a shy bladder at times. I whipped the bottle out and filled it up mid-stream as advised. Then off I went to the Laboratory Department, which U had pointed out to me during our earlier visit. There was still no one answering the doorbell, so I sat down on a bench in the hall trying to cool off after the long walk. A few minutes later a lady passed me and walked into the lab, shortly after peeping out the window asking if I was a client. I handed her my lab referrals and the urine sample as she ushered me in. I sat down in the torture chair, putting my arm down on the armrest ready for my sentence. She looked at the list of test to do… viral load, CD4 count, genotyping, CBC, hepatitis profiling, and urinalysis… and whipped out four vials to fill. Four vials? That’s worse than the three I filled up at the Manila Health Department months earlier. This would be a record for me. Or so I thought. I looked away as she started to push the needle into my arm. I’m getting used to the feeling, but still can’t stand seeing it. Next thing I know, she’s asking me to hand her two more vials from the table next to me. Four? Plus two? Another record broken… but I have to admit it wasn’t that bad. So there I was, six vials of blood lighter, a survivor.
I walked next door to the X-ray Department, again no one was there. There’d been a sign saying the personnel were at the canteen, so again I sat down and waited. The old lady in charge soon showed up, and I was in and out of there in a flash.
Last stop, some test called PPD. Research now tells me it stands for Purified Protein Derivative, a skin test for tuberculosis. I had been pointed to the emergency room for it, from where I was pointed to the Pharmacy. I showed the referral, and I was given a box of something called Biocin, and told to return it after. Weird. Not something I’d usually hear at a pharmacy. So I returned to the E.R. and handed it to the nurse, who asked for my chart. Chart? What chart? I had nothing else with me but the referral, but was told they couldn’t do the test without the chart. I tried texting Ate, but received no reply. U had given me her number beforehand in case I encountered some problems. So I had to wait, thankfully she arrived early, around 8:30 am.
Needless to say at this point, I didn’t make it to work on time. So anyways, Ate accompanied me back to the E.R., and gave her personal referral in order to push the test through. So apparently, PPD is a skin test. And I must say skin tests hurt. I got a bump full of the medicine in my arm, had the nurse draw a circle around the test site, plus a note on a piece of tape on my arm with the date and time it was administered. Bad enough that I couldn’t wet my arm for three days, but I had to have the pen mark and the tape on me at work. Hmmm. I have some explaining to do.
Take note again, that all the tests I had done were free at the RITM, except for the P120.00 I paid for the Biocin thingy. I’m told the test will be free everytime, as oppose to that at San Lazaro, where follow-up CD4 counts cost something like P4,000.00, and viral load tests P6,000.00. That should be more than enough savings to pay for the additional transport to the RITM.
I realized I didn’t bump into any other fellow clients, Ate being the first and only person I encountered from the OPD that day. I was out of the RITM by 9:00 am, already having sent a text message to work saying I would be late. I walked back to the highway, but this time following my instincts and passing a road I hadn’t tried before. I think I got the right and shortest route this time. I made the trip back, via the bus and the MRT again, and reached work past 10:00.
Another amazing day, not even half through, but already got a lot done. Just two tests left, a fecalysis and RPR titer. A stool sample would spoil in the length of the trip, while the latter test, they didn’t have at the RITM. I’m thinking of going back to Dra. Malou at the Manila Health Department for those tests, as well as to pay them a visit and update them on my status. I’m planning to do that Tuesday morning, another day I’m taking off from work. A bloody and shitty Tuesday, literally.
I have another visit to the RITM scheduled on Tuesday afternoon for a consultation with the doctor. I’ll find out the results of the tests, plus my options for ARVs. So it’ll be another busy week again for me. My verdict is coming… again. Wish me luck!
Friday, August 15, 2008
RITM Day 1 (A Day w U)
It’s a huge week for me. This is the week that I make my first appearance at the Research Institute for Tropical Medicine. I just realized it’s in Muntinlupa already, of which Alabang is a part. That shows you how unfamiliar I am with the south parts of Manila. The farthest south I’m familiar with is Taguig, where my first boyfriend lives.
Anyways, yes, it was U who offered to take me to the RITM. I took a leave from work this Monday. U and I agreed to meet at the GMA Kamuning Station of the MRT at 9:00 am. I left the house at 8:00, amidst the baffled look on my mom’s face, who was wondering if I was actually going to work. Of course, I lied, and said I was. I left as late as possible without being too obvious. I passed by the ATM to pay some bills and kill some time before riding a bus to the MRT station. I got there around 8:30, and lined up to get a ticket to the Magallanes Station. I didn’t mind being early, especially after U mentioned he hated waiting. He got there and acknowledged he was late by eight minutes. Let’s just say he was worth the wait. Hahaha.
I had decided to dress casually, in just a white shirt and a pair of jeans, which may have added to doubt in my mom’s mind as to where I was going. But U surprised me, he was dressed even more simply, in a pair of shorts and a shirt. Hot nonetheless.
Anyways, enough flirting. I was trying to account the cost of transport to the RITM. Tricycle to EDSA, P7.50. Bus to GMA Kamuning Station, P12.00. MRT to Magallanes, P14.00. Bus to Metropolis Alabang via the Skyway, P35.00. And finally an FX Taxi at the Alabang Central Station to the RITM, P20.00. So an hour and a half and P88.50 later, we were there. The RITM.
It was a quiet building on top of a hill, which looked decent with upkeep. We walked through the corridors of the main building, and I was shocked when I realized that U knew so many people there. I just thought he was the serious type, shy to some extent, so he didn’t seem like the type.
We walked to the Out-Patient Department, which I later realized was dedicated to HIV “clients”. Yep, that’s the term U always used. We were not patients, we were clients. We encountered a couple of guys there who he greeted by name and introduced me to. Seeing that the doctor was not there yet, we left the room and wandered back through the corridors. He introduced me to one lady, Ate, who we passed. We then headed on out what seemed to be a rear entrance to the bulding.
We came to what was an Annex building of the RITM. We walked in and all I could think of was that it was like a school building. Its doors opened up into a courtyard around which some quiet rooms and corridors sat. We walked to one of the corner units of the building. No labels, no room number, nothing. Door opens and… wow! It honestly looked like a kindergartener’s classroom! There were small scale sofas lining three of the four walls, and a long desk lining the fourth, behind which a pair of ladies were sitting. U introduced us.
This other Ate is a nurse I think, and the other girl was identified as the encoder of the OPD Annex. They were nice, regarding me as U’s new recruit. They invited us to take our lunch with them, so we went and bought some food to eat with the rice and other viands they already had. It was nice to see U in what seemed to be his element, his territory. He was more loose, less stern, lighter and happier. He ate to his heart’s content, admitting he had always been big on rice, and even joking (I think) that he was fattening me up as well. I would have loved to assume he was flirting with me.
Just a few minutes after we were done with lunch, we got word that the doctor was in, so we headed back to the OPD, and there she was, the doctor, who ushered me to take a seat as she was still with another client. U got his supply of medications while we were waiting. As much as I’d like to think that he was there purely for me, hehehe, that was not the case.
Anyways, it was finally my turn, and U sat in with me and the doc. U gave his introduction. I was the guy registered at San Lazaro, advised to start on ARVs, but not without the family knowing, but was not ready to tell the family. I gave her all the copies of the medical results that I had. She looked through them and asked me some of the usual questions. Why I got tested, where I got it from, what I was feeling, etc. Then she helped me fill up the information sheet, with the usual stuff. Sexual orientation, profile of sexual partners, vices, medical history, etc. And then she came to my verdict.
Definitely, I was welcome there. My previous lab results were good, but they’d have to take new baseline measurements for me. Noting my previous CD4 count of 343, the doctor said it wasn’t too urgent that I start on ARVs, and that in cases like mine, it would be my choice if I wanted to start. Hmmm. Interesting. She asked me, “How badly do you want to start?” I said, “Pretty badly.” She explained to me the dedication involved in taking ARVs. Once I start, it would be a lifetime commitment. The medication would only be effective if taken exactly on schedule. No misses, no advances, no forgetting, no losses. I think I’m ready for that.
That being said, she and Ate worked together to give me all the lab tests I’d need to have done. Some old friends, the CBC, x-ray, and CD4 count were to be done. But a lot more new tests were coming my way. The Viral Count, which measures the concentration of the virus in my blood. Urinalysis and Fecalysis. PPD, which was meant to detect a tuberculosis infection. Hepatitis Profiling, to check for hepatitis. And most amazing, Genotyping, which the doctor says can help predict which types of medication I will be most compatible with. The fecalysis I opted to take elsewhere, because of the 30 minute timeframe given for a valid sample. All the other tests are free, except for the PPD, for which I had to pay for the medication. Just P120.00. Not too bad.
So we finally left the RITM, with my lab requests on hand, my Alabang experience put on hold for now, until Thursday that is, when I’m having my lab tests done. U and I actually walked back towards the highway, where we were to catch a bus back home. It was one long, hot, sweaty, tiring day for U and I, but it was all worth it. It was another eye opener for me.
My assessment? Transport expense is a point for San Lazaro. The P88.50 trip to RITM was everything compared to the P20.00 I spend getting to San Lazaro. Aesthetically, RITM is more pleasing over all. Comparisons to a school building and a kindergartener’s room should spell it all out. Plus the tranquility of being hidden up on a hill does have some novelty to it. The crowd is much less at the RITM, but as I said before, the pleasure of the Festive Thursdays at San Lazaro will probably wear out. Treatment-wise, I appreciate very much the several options and open-mindedness afforded to me by the people at the RITM. It’s striking how differently they handle patients or clients, and I’m happy with the way RITM does.
Obviously, I look forward to the next few visits to the RITM.
My HIV journey has just hit a fork in the road. Looks like it’s a good one.
Tuesday, May 27, 2008
Count Down to Count
I just heard back from the doctor of the HIV ward of the San Lazaro Hospital, and she's confirmed my appointment on Thursday for my CD4 count.
I'm getting a bit of nerves again, both about the ward's Thursday crowd, and the test as well.
So to at least equip myself for the latter, I've been doing some research.
What are CD4 Cells?
CD4 cells, also known as T-cells, are a type of lymphocyte or white blood cell. An important part of the immune system, CD4 cells come in two main types. T-4 cells, or CD4+, are "helper" cells which lead attacks against infections. T-8 cells (CD8+) are "suppressor" cells that end the immune response. CD8 cells can also be "killer" cells that kill cancer cells and cells infected with a virus.
Why are CD4 Cells Important in HIV?
The cells that HIV infects most often are CD4 cells. The virus becomes part of the cells, which when multiply to fight infections, also make more copies of the HIV. The number of CD4 cells (their CD4 cell count) goes down when infected with HIV. The lower the CD4 cell count, the more likely the person will get sick.
What Factors Influence a CD4 Cell Count?
The CD4 cell count varies a lot. Time of day, fatigue, and stress can affect test results. It's best to have blood drawn at the same time of day for each CD4 cell test, and to use the same laboratory.
Infections and vaccinations can cause CD4 and CD8 counts to go up. It is advised to have CD4 cell counts at least a couple of weeks after recovering from an infection, or getting a vaccination.
How Are the Test Results Reported?
Reported as the number of cells in a cubic millimeter of blood, normal CD4 counts are between 500 and 1600. CD4 counts can drop to as low as zero in people with HIV.
What Do the Numbers Mean?
The CD4 cell count measures the health of the immune system. The lower the count, the greater damage HIV has done. Anyone who has less than 200 CD4 cells is considered to have AIDS according to the US Centers for Disease Control.
CD4 counts are also used to indicate when to start certain types of drug therapy such as antiretroviral therapy, aggressive retroviral therapy, and drug prescriptions to prevent opportunistic infections.
The complete article can be found at http://www.thebody.com/content/art6110.html.
Wish me luck.
Thursday, May 08, 2008
The Somewhat Big Day
In the tradition of the Lifestyle Network's Clean House, it's reveal day for me. I took the morning off from work again to get my lab results and bring them to the doctor at the HIV ward of San Lazaro Hospital.
I first went to the Manila Health Department to get the results of my CBC, FBS, BUN & CREA. I usually play know-it-all when it comes to numbers like these, so I evaluated my results. FBS, BUN & CREA levels were within normal ranges. How do I know? Well, they were printed alongside my results. Hehehe.
My CBC results weren't as ideal. Hemoglobin and Erythrocytes were good, but Leucocytes were mostly out of normal ranges. I got a bit worried, but decided to hear straight from the doctor what was wrong with me. I next went to a private clinic nearby and got the results for my SGPT, SGOT and ALP. All good. I was a bit relieved to be honest, that most of my results were within normal range.
I had my chest x-ray result with me as well, from a previous checkup about three weeks ago. Just a routine checkup that time required for the Sanitary Permit of the company I work for. This was pre- my HIV.
Walking to the HIV ward, I was a bit nervous. I'd been told that every Thursday was a busy day for this ward, as this was check-up day for those in the HIV registry. This was to be my first Thursday here. And Thursdays will never just be Thursdays again.
Monday, May 05, 2008
Mission: Impossible
The afternoon was the highlight of my day. Technically my first visit to the HIV ward of San Lazaro Hospital. The H4 ward. For those not familiar, this is where those with HIV and AIDS are confined. Honestly, it’s a dingy, gloomy old building, and I think it’s a shame it hasn’t gotten spruced up to at least give the patients a more lively and happy environment to live in. I can imagine it’s not hard to feel depression there… something that they say you should veer away from when you have HIV.
I was referred to one particular doctor. She wasn’t available when I got there, so I had to wait for about half an hour before seeing her. The wait was agonizing. Apparently, that ward is notorious. You don’t go there for just any reason. Either you’re a doctor or some medical personnel, a relative, or most probably, you have HIV. I was seated by the door to the ward along with a couple of patients confined there, and I felt like a spotlight was aimed at me, waiting for them to ask me, “Are you one of us?”
Finally, the doctor came around, and she was expecting me. We stepped into her cubicle, and the briefing began. She discussed all the facts about HIV and AIDS. Stuff that I had learned in school. And I realize, education and awareness just doesn’t cut it. I’m living proof.
I know she felt some pity for me. Pity because I was young. Pity because I had gotten tested on a whim, and not because I was feeling something bad. Pity because I was turning 30 tomorrow. Pity because I was alone.
I tried to keep a light attitude the whole time. I only almost got teary-eyed when she was trying to convince me that my family should know. She just made me feel lonely, that’s all. I said it would happen eventually, but that now is not the right time.
And then came my baptism. I was christened with my patient number. To preserve the anonymity of patients, especially when it came to records and laboratory tests, people on their HIV registry are assigned patient numbers. I am H4-2008-054. Let’s break it down. H4 is the ward identification, 2008 stands for the year that I was diagnosed, and 054 means I’m the 54th on the registry for this year. Fifty-four?! Wow! And I thought I was all alone…
I was given my lab referrals as well, and I plan on going to get them done tomorrow. Oh, boy, another date with the needles. What a happy birthday it’s gonna be…
On a positive note, I feel like a secret agent… on one hell of a mission. Agent H4-2008-054… I’m Poz… Pinoy Poz.
