I took another day off today from work, intending to go for this month’s med reload. To beat a deadline, I spent the morning going to and from Pampanga to submit some reports for work. After having lunch at home, I was on my way to RITM in Alabang. I got there at about 3:00 in the afternoon.
Walking to the building, I saw Ate going towards the other office with a bilao of pansit. She didn’t notice me and I wasn’t exactly there for the food, so I still headed for the clinic, expecting someone else was there while Ate was gone. But it was locked. So I reluctantly headed for the back office in the other building, dreading that I might walk into a celebration of some sort. I got to the door of the office, but the shy boy in me took over and I chickened out. I turned and walked back to the clinic and stood out on the corridor waiting for someone to show up.
After about 10 minutes, Ate passed by and I lurked closely behind. She welcomed me and asked how I was doing, and relayed to me how thankful Baby Nathan’s Dad was when they last came in for a check-up. I just laughed and smiled, not knowing exactly how to accept credit that wasn’t completely mine to take.
She took my Regimen Card from a pile, and told me to wait while she got my ARVs from the pharmacy. I was enjoying the time alone, when a familiar face showed up. It was Y. He seemed to recognize me and after a few minutes of awkwardness, I reminded him that we’d first met at San Lazaro back in April. Apparently he’d been confused whether he really met me there or it was just his imagination. He laughed finally realizing we went way back.
A while later, Ate came back with my ARVs, and a couple of more guys I’d met before came in to hang out. Together we trekked to the other office, and I was comfortable to be going with someone I knew. Stepping in, there were around 10 of us there. And after introductions all around, it was time to chow.
I honestly didn’t get to eat much, just like at the Christmas party, and I think I get that way when there’s a lot going on. And with everyone breaking up into pairs or little groups talking about everything under the sun, the observer in me was trying to take all the information in.
At one point, Ate walked into the office with a bunch of ARV supplies, where I noticed some big green boxes that I could not compare to the ARVs I’m getting now. My eagle eye didn’t fail me, and I read the label which said Protease Inhibitor, another type of ARV which was not part of my own regimen. I’m not really sure if that’s a good or a bad thing. But seeing how the container was comparable in size with a can of Pringles made me think twice about being envious.
One of the things that struck me most came from one of the last persons to walk into that room. Let’s call her S. S is HIV positive, and she got it from her husband who worked overseas as a seafarer, one of the at-risk groups for HIV. If I understood right, she was single now, either because she was widowed or divorced. She mentioned she had also lost a child, but I wasn’t brave enough to ask whether the kid was also HIV positive.
I actually first encountered her back in May or June amidst the standoff I was having with the San Lazaro doctors, when an online poz friend suggested I transfer to RITM and gave me her name and contact number in case I needed assistance. I never got to contact her that time, since I met U soon thereafter, who brought me to RITM.
Apparently, S is part of one of the HIV support groups, and she discussed the issues with the ARV supplies with us who were there. Apparently, the Global Fund grant that is in motion today is meant to supply the Philippines with ARVs and support up to 2010. But the wheels are already in motion for the country to qualify for another round of grants for the years after that.
The worst case, she says, is that there is an agreement between the Department of Health and the Philippine Health Insurance Company, or PhilHealth wherein PhilHealth is to shoulder ARVs for a number of years. Although I didn’t understand completely, she kept mentioning the word cooperative, and how the cooperative would eventually become self-sufficient and self-sustaining in being able to fund the need for ARVs. I’m imagining it’s a cooperative formed by and composed of those living with HIV and AIDS. If that happens, it would be very empowering, don’t you think?
So anyways, with so many details to remember and so much to think about, I was about ready to head home. I hitched a ride with and a couple of the guys, and S and another lady from another HIV support group left with us as well. S told more stories, about how she recovered from to skin and bones, and about how she was part of the group that lobbied for the grants that now provide us free ARVs, and that back in 2002, there was none to speak of. It was humbling to be in the presence of one of our apparent heroes who paved the way for us who currently live with HIV in the Philippines to be able to do just that. To live.
I, S and her lady friend got dropped off at Shangri-la Mall, where we chatted for a good 20 minutes more right smack in the middle of the sidewalk. S and I exchanged numbers, and she said that if I needed help in disclosing to members of my family, they would be very much willing to help. She did, thankfully, acknowledge that disclosing was a difficult thing and should happen in my own right time. She was also convincing me to consider getting involved in the HIV support groups, oblivious to how much I’ve already been dabbling in the field of advocacy. She used the metaphor of stepping out of my locked box, which I took to be my HIV closet, and I wasn’t planning to brag about how far out of my closet I’ve been strolling either. She probably didn’t know that there were people from her side of the fence that actually tried to keep me in my closet.
I dunno if it was the Bikolano blood in us both, but I felt a good pure vibe in S, despite her being part of one of the now seemingly notorious HIV advocacy groups. I was elated at how she explained the issues behind the future of our ARV supplies, which she did much better than the wicked Remedios lady that I watched on TV back in December. So with that, we went our separate ways and I headed home with another day of information overload, my first for 2009.
Friday, January 16, 2009
Overflow
Wednesday, December 03, 2008
Burn the Notebook
Yesterday was a usual day. Worked. Headed home. Had dinner. Took a shower. Drank my meds. Hopped into bed. But I had no plans of sleeping. I was waiting for Reporter’s Notebook, a show on GMA channel 7, which was to have a post-World-AIDS-Day feature on HIV and AIDS. I couldn’t wait. I knew it would be late, but man, it started at midnight, way past my 10:00 pm bedtime. Even worse, they started with another feature, on firecrackers. Yawn.
Finally, at 12:30 in the morning, the segment came on. It was hosted by Maki Pulido, and sort of started me off with a Huh? when she introduced HIV as short for Human Immuno Virus. Hmm, not a good sign.
They started off with interviews of doctors, including my very own Dr. Diana Mendoza from the Social Hygiene Clinic of the Manila Health Department. I honestly lost track of what she was saying, since my mind was going fanatic, knowing the face on the tube. Statistics were laid out: 33 million people worldwide living with HIV, 3,515 people in the Philippines diagnosed to have HIV, and up to 7,490 people in the country possibly actually carrying the virus without their knowing. I’m just one of these statistics.
They mentioned that there has been an alarming rise in diagnoses of HIV infections, this October being the highest ever, at 59 for the month. Personally, it’s a good thing. It doesn’t mean more people are getting infected. It just means that more people are finding out they are. More people having the guts. More people taking responsibility. Who knows how long they’ve been carrying the virus around and not knowing, right? And yes, I speak from experience.
They then introduced three vignettes of people in the Philippines infected by HIV. First, Eric, a married seafarer, who used female sex workers while deployed on a vessel. Second, Joey, a single male, who was a sex worker for five years. Third, Anthony, a callcenter agent who’s had hundreds of partners and has sex even when on break at work.
Wow, thanks for helping the world judge us, ha. I’ve been drowning in Positivism so much, I probably forgot how important it was to point out how slutty we are. Hmmm, so what image is this show trying to leave? That HIV is a punishment for the promiscuous? That’ll really help people chicken out of getting tested, freaks. Now, I was really getting pissed. It’s a good thing they didn’t go as far as push the stereotype of HIV being a homosexual disease.
Maki Pulido and her team continued to show they’re not so pulido, when she asked the call center agent if he knew from whom he got it. Anthony answers something to the tune of, I don’t know anymore, because I’ve had so many. When asked how many sex partners he’s had, he replies, “More than 400, less than 300…” which causes Ms. Pulido to let out a whopping “Wow!” Well, the last time I checked my math, there’s no such number that’s more than 400, less than 300, so I don’t know how they could let that slip through editing. Wow your face.
They went on to show experts from different fields, heading later on to the topic of ARVs. Eric starts off saying ARVs are expensive, but the segment goes on to say that there is access to free ARVs in the country, thanks to foreign funding of government efforts. Then Ms. Remedios AIDS Foundation pops up, and says the free medicines will only be supplied until 2012, and that after that, the burden will be on the government to continue to be able to support the free medicines. At that point, I could feel the blood rushing to my head.
Wow, Remedios AIDS Foundation, thank you for not putting that in more pleasant terms. Thank you for pointing out that we are a burden. And thank you for letting all my hopes and dreams beyond 2012 fall to pieces. Your advocacy amazes me. Yes, I am being sarcastic.
I could literally feel my CD4 count dropping by the minute, because the negativity of the statements was bothersome. Way to scare us all back into hopelessness. You Remedios AIDS F... F... Frustrators!
I don’t really know who to blame. Whether it’s the resource person, the host, the researchers, the staff, the show or the station. That’s what you get when you squeeze as big a topic as HIV into 25 minutes, inclusive of 10 minutes of commercial content. I really hope you made money off of this one. Thanks for bastardizing HIV. I really regretted having to wait up for this program. It's time to burn this notebook.
The only good part is that this reaffirmed why we need to push Positivism to the forefront. It’s really time for change. Now.
